Cystic Fibrosis Archives - NORD (National Organization for Rare Disorders)

Scroll
To Top

donate

Advanced Search

Archives for: January 18th, 2018

Early Diagnosis: Perspectives from NORD Student Chapter Leader, Harjot Randhawa

Written by Christina Jensen on January 18, 2018

During the 2017 Rare Diseases & Orphan Products Breakthrough Summit over 700 individuals from the rare disease community gathered to advance the dialogue in rare diseases. NORD was pleased to have a large group of student chapter leaders involved with the event in 2017. One leader,… Read More

Miss Connecticut Talks to NORD about Rare Diseases, the Miss America Pageant, and Voting for America’s Choice

Written by Jennifer Huron on August 31, 2015

Next month, millions of Americans will tune in to watch the Miss America Pageant, airing live on ABC on September 13, 2015, from Atlantic City, New Jersey. We were excited to speak with Miss Connecticut Colleen Ward, who… Read More

Tweets From NORD

The zebra is the official symbol of #rarediseases in the U.S. Everyone has their own unique stripes, those characte… https://t.co/xyDQQI2Ob6about 1 hour ago
Winter 2019 Fashion Trend STRIPES! Get ready to #ShowYourStripes for #RareDiseaseDay... https://t.co/QfjNGNwjzW3 hours ago
Get ready to #ShowYourStripes for #RareDiseaseDay & check out our new cover photo! More information coming tomorrow… https://t.co/YBGpmMRSrM23 hours ago
Last week, #NORD submitted comments on FDA #PatientEngagement in #MedicalDevice #ClinicalTrials. Check them out on… https://t.co/xbQw94Zq9qyesterday

Follow @RareDiseases

Alone we are rare. Together we are strong.®

For Patients and Families

For Industry

For Clinicians and Researchers

For Patient Organizations

Advocate

Get Involved

Home

About

News

Events

Contact

Careers

Brand Usage Guidelines

Sign Up for NORD News!
For Email Newsletters you can trust.

Follow NORD

Site Map

Website Credits

Privacy

Copyright ©2018 NORD - National Organization for Rare Disorders, Inc. All rights reserved. NORD is a registered 501(c)(3) charity organization. Please note that NORD provides this information for the benefit of the rare disease community. NORD is not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments. Patients must rely on the personal and individualized medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder.