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Archives for: January 18th, 2018

Early Diagnosis: Perspectives from NORD Student Chapter Leader, Harjot Randhawa

Written by Christina Jensen on January 18, 2018

During the 2017 Rare Diseases & Orphan Products Breakthrough Summit over 700 individuals from the rare disease community gathered to advance the dialogue in rare diseases. NORD was pleased to have a large group of student chapter leaders involved with the event in 2017. One leader,… Read More

Miss Connecticut Talks to NORD about Rare Diseases, the Miss America Pageant, and Voting for America’s Choice

Written by Jennifer Huron on August 31, 2015

Next month, millions of Americans will tune in to watch the Miss America Pageant, airing live on ABC on September 13, 2015, from Atlantic City, New Jersey. We were excited to speak with Miss Connecticut Colleen Ward, who… Read More

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The #RareDisease of the Week is Ehlers-Danlos Syndrome. Help make an impact for EDS patients by making a donation t… https://t.co/niLcLU18IFyesterday
The Jansen's Foundation (@NeenaNizar) together w/ Omaha Children's Hospital announced its 1st Skeletal Dysplasias C… https://t.co/RrAg5EE8W7yesterday
Know someone affected by mitochondrial disease? @MitoAction invites you to join them for their Family Weekend at Vi… https://t.co/X5VP0TqTHHyesterday
Don't wait! Register NOW for the #NORDSummit. After today, registration rates increase significantly! Get your tick… https://t.co/m0sBjF6wsXyesterday

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Copyright ©2018 NORD - National Organization for Rare Disorders, Inc. All rights reserved. NORD is a registered 501(c)(3) charity organization. Please note that NORD provides this information for the benefit of the rare disease community. NORD is not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments. Patients must rely on the personal and individualized medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder.