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Archives for: January 18th, 2018

Early Diagnosis: Perspectives from NORD Student Chapter Leader, Harjot Randhawa

Written by Christina Jensen on January 18, 2018

During the 2017 Rare Diseases & Orphan Products Breakthrough Summit over 700 individuals from the rare disease community gathered to advance the dialogue in rare diseases. NORD was pleased to have a large group of student chapter leaders involved with the event in 2017. One leader,… Read More

Miss Connecticut Talks to NORD about Rare Diseases, the Miss America Pageant, and Voting for America’s Choice

Written by Jennifer Huron on August 31, 2015

Next month, millions of Americans will tune in to watch the Miss America Pageant, airing live on ABC on September 13, 2015, from Atlantic City, New Jersey. We were excited to speak with Miss Connecticut Colleen Ward, who… Read More

Tweets From NORD

#NORD Member, @CureSMA, is hosting a #CME session & NORD's Vice President of Educational Initiatives will be a Keyn… https://t.co/1iwS1ezT7c28 minutes ago
This week, #NORD Director of Research Programs, Vanessa Boulanger, is attending @ISOQOL 25th Annual Conference in D… https://t.co/QEeVhzQ1Gx2 hours ago
NORD is seeking proposals from accredited CME providers to collaborate in providing CME events and online resources… https://t.co/NlxsTkSfQK3 hours ago
Listen to recent comments from Janet Woodcock, Director CEDER, @US_FDA on #NORD and the importance of natural histo… https://t.co/MzIFsq8V4D5 hours ago

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Copyright ©2018 NORD - National Organization for Rare Disorders, Inc. All rights reserved. NORD is a registered 501(c)(3) charity organization. Please note that NORD provides this information for the benefit of the rare disease community. NORD is not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments. Patients must rely on the personal and individualized medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder.