Dr. Frederick Kaplan, M.D. – 2017 Rare Impact Award Honoree

Written by on March 15, 2017

2017 Honoree
Rare Impact Award

Frederick Kaplan, M.D.

Dr. Frederick Kaplan’s life changed the day he met a 2-year-old girl with fibrodysplasia ossificans progressiva (FOP), a debilitating and progressive rare bone disorder. In the three decades since, he has dedicated… Read More

Fibrous Dysplasia Foundation and NORD Launch Cutting-Edge Study of Fibrous Dysplasia/McCune-Albright Syndrome

Written by Jennifer Huron on November 3, 2016

Washington, D.C., November 3, 2016—The Fibrous Dysplasia Foundation and the National Organization for Rare Disorders announce the launch of an ambitious study to research fibrous dysplasia/McCune-Albright syndrome (FD/MAS). The new study, the FD/MAS Patient Registry, creates a platform for patients… Read More

Archives for: March 15th, 2017

Dr. Frederick Kaplan, M.D. – 2017 Rare Impact Award Honoree

Written by on March 15, 2017

Fibrous Dysplasia Foundation and NORD Launch Cutting-Edge Study of Fibrous Dysplasia/McCune-Albright Syndrome

Written by Jennifer Huron on November 3, 2016

Alone we are rare. Together we are strong.®