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Archives for: April 3rd, 2020

Fanconi Anemia Research Fund and NORD Launch Natural History Study of Fanconi Anemia

Written by Laura Mullen on April 3, 2020

This week, the Fanconi Anemia Research Fund (FARF) and the National Organization for Rare Disorders (NORD) launched the largest-ever study to research Fanconi anemia (FA), a patient-driven natural history registry that will result in a wide variety of clinical findings. Fanconi anemia currently has no cure.

The new study, “An observational… Read More

Healthline and NORD Announce Recipients of 2018 Stronger Scholarships

Written by Laura Mullen on August 15, 2018

Washington, D.C., August 15, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, and Healthline Media, the second largest health information site with 90 million monthly visitors, have announced the recipients of the… Read More