NORD Webinar: Genetic Testing 101 for People with Rare Diseases
Written by Christina Jensen on August 22, 2018
NORD 35th Anniversary Blog Series: 1990s-2000s
Written by Jennifer Huron on June 25, 2018
2018 is a big year for the rare disease community – NORD is celebrating its 35th anniversary. For the past 35 years, NORD has taken pride in being the rare disease community’s biggest advocate. Our policy, research and other efforts have played a significant… Read More
Neurology Reviews® and NORD Publish the 2018 Rare Neurological Disease Special Report
Written by Laura Mullen on March 27, 2018
Parsippany – March 26, 2018 – The 2018 Rare Neurological Disease Special Report has been published by Neurology Reviews in collaboration with NORD, the National Organization for Rare Disorders, the leading independent nonprofit representing the 30 million Americans with rare diseases.
Neurology Reviews is pleased to provide the most current information and news… Read More
NORD Issues Statement Opposing the Preserving Employee Wellness Programs Act (H.R.1313)
Written by Jennifer Huron on March 15, 2017
Washington, D.C., March 15, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement opposing the Preserving Employee Wellness Programs Act (H.R.1313):
“Last week, the House Committee on Education and the Workforce voted to advance the Preserving… Read More
New Guidelines on Testing Kids’ DNA–the Cliff’s Notes Version
Written by on March 12, 2013
Exomes are big news. Sequencing of the protein-encoding part of the genome is increasingly solving medical mysteries in children. (more…)