Written by Christina Jensen on March 7, 2018
Thank you to our rare disease partners and every person who worked to heighten awareness on Rare Disease Day® in 2018. On this day, everyone 
comes together globally to bring attention to all 7,000 rare diseases that combined affect 30… Read More
Written by Jennifer Huron on April 4, 2017
Washington, D.C., April 4, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, announces the recent hire of Debbie Drell as Director of Membership. In her role, Debbie will be responsible for overseeing NORD’s Membership programs, which support the… Read More
