Written by Valaree DonFrancesco on September 13, 2022
Registration is OPEN for the 2022 RDCA-DAP Workshop! Join us this September as we bring rare disease stakeholders together for next-level platform demonstrations and case studies, industry expert presentations, panel discussions, and more.
Register here: bit.ly/2022_NORD_RDCA-DAP_Workshop
Attendees of the 1.5-day workshop, including patients, providers, researchers, clinicians, biopharmaceutical companies, regulatory reviewers, and… Read More
Written by Mary Dunkle on July 7, 2022
Explore the five steps in drug development and discover new opportunities to get involved
More than 95% of rare disease patients lack an FDA-approved treatment for their condition. However, today there are more opportunities than ever before for patients, caregivers and patient organizations to play a key role in advancing R&D… Read More
Written by Rohan Narayanan on October 5, 2021
This Request for Proposal (RFP) is for the creation of a logo and branding guidelines for the Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP®), a project led by Critical Path Institute (C-Path) and the National Organization for Rare Disorders (NORD) with funding and support from the U.S. Food and… Read More
Written by Valaree DonFrancesco on September 1, 2021
TUCSON, Ariz. and WASHINGTON, September 1, 2021 — For two years, Critical Path Institute (C-Path), the National Organization for Rare Disorders (NORD) and the U.S. Food and Drug Administration (FDA) have joined with others throughout the rare disease community to create a novel, best-in-class platform to accelerate rare disease treatment innovation.
On Read More
Written by Jennifer Ryan on December 16, 2020
As a 2020 scholarship recipient, I was able to attend the NORD Rare Diseases and Orphan Products and Breakthrough Summit in October and to hear from inspiring patients, hard-working medical professionals and research experts. Specifically, I was very drawn to the “Unlocking the Power of Health Care Data” panel,… Read More
