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Archives for: February 26th, 2021

NORD’s Pamela Gavin Interviewed on Health Equity by PharmaBoardroom for Rare Disease Day

Written by Valaree DonFrancesco on February 26, 2021

PharmaBoardroom, an international pharmaceutical industry media outlet providing industry trends, news and reports geared to senior professionals, recently interviewed Pamela Gavin on the importance of health equity and what NORD is doing towards achieving equity for the rare community in the United States.

The interview can be read in its entirety… Read More

Telehealth Report from NORD Covered in Managed Healthcare Executive

Written by Valaree DonFrancesco on November 13, 2020

NORD’s recent telehealth report was featured in an article in Managed Healthcare Executive, a digital magazine from MJH Life Sciences, on 11.12.2020:

“The federal government took important steps to temporarily expand coverage for telehealth services during the pandemic, including removing barriers for Medicare patients. Plus, most states are allowing out-of-state healthcare… Read More

NORD Issues Report on Ensuring Access to Telehealth for Rare Diseases

Written by Jennifer Huron on October 15, 2020

For those in the rare community, one of the few positives that have come from the global COVID-19 pandemic has been the wider availability of telehealth services. Through surveys, virtual discussion groups and direct advocacy efforts, NORD has continued to track rare patients’ and caregivers’ use of and experience with… Read More

NORD Releases Four Guiding Principles on Telehealth Issues

Written by Valaree DonFrancesco on August 17, 2020

The COVID-19 pandemic has had a huge impact on the rare disease community. NORD has heard from countless patients over the last few months about how this crisis has added to the already significant challenges that come from living with, or caring for, someone with a rare… Read More