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Archives for: September 19th, 2021

Telehealth Awareness Week

Written by Valaree DonFrancesco on September 19, 2021

The National Organization for Rare Disorders (NORD) is proud to support the inaugural Telehealth Awareness Week presented by the American Telemedicine Association! During the COVID-19 public health emergency, telehealth has played a critical role in providing safe, quality care to patients and families across the country. Taking place September 19-25,… Read More

NORD’s Rare Disease Advisory Councils

Written by Valaree DonFrancesco on June 30, 2021

On the show today, it’s all about Rare Disease Advisory Councils – or RDACs, for short. RDACs provide a platform for the rare community to have a stronger voice in state government. Joining us is NORD Director of Policy Heidi Ross, your one-stop human shop to understanding what these councils… Read More

Fifteen Months Later…

Written by Valaree DonFrancesco on June 9, 2021

Today on NORDpod, we welcome back Lesli Nordstrom, Director of Marketing and communications at NORD. As returning champion to the show, she’s back to get real about the rare disease community with reflection on the past 18 months. The pandemic’s impact cannot be understated. Millions of lives have been uprooted… Read More