Coalition letter urging Congress to preserve funding for programs that provide critical support to state newborn screening programs
Published: Feb 10, 2017
Tagged in: Newborn Screening, Access to Diagnostics
For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
Coalition letter urging Congress to preserve funding for programs that provide critical support to state newborn screening programs
Published: Feb 10, 2017
Tagged in: Newborn Screening, Access to Diagnostics
Coalition letter urging Secretary Azar to ensure that the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) can continue its work
Published: Dec 19, 2019
Tagged in: Newborn Screening, Access to Diagnostics
Coalition statement expressing appreciation over the introduction of the Newborn Screening Saves Lives Reauthorization Act in the Senate
Published: Jul 18, 2019
Tagged in: Newborn Screening, Access to Diagnostics
Coalition letter to Congress in support of the Newborn Screening Saves Lives Reauthorization Act (H.R.2507)
Published: Jun 24, 2019
Tagged in: Newborn Screening, Access to Diagnostics
NORD letter to the House Committee on Energy and Commerce in support of the Newborn Screening Saves Lives Reauthorization Act of 2019 (H.R. 2507)
Published: Jun 24, 2019
Tagged in: Newborn Screening, Access to Diagnostics
NORD letter to Texas Governor Greg Abbott in support of SB 747 and SB 748, legislation pertaining to newborn screening
Published: Jun 3, 2019
Tagged in: Newborn Screening, Access to Diagnostics