NORD and 55 organizations urge Senate HELP committee to take action on S. 350, The Newborn Screening Saves Lives Reauthorization Act of 2021
Published: Sep 12, 2022
Tagged in: Newborn Screening, Access to Diagnostics
For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD and 55 organizations urge Senate HELP committee to take action on S. 350, The Newborn Screening Saves Lives Reauthorization Act of 2021
Published: Sep 12, 2022
Tagged in: Newborn Screening, Access to Diagnostics
NORD joins 78 other organizations on a letter to include the “Newborn Screening Saves Lives Reauthorization Act of 2021” in the omnibus spending bill for FY 2022
Published: Feb 4, 2022
Tagged in: Newborn Screening
NORD and coalition partners send letter to Congressional leaders asking that they increase funding for CDC and HRSA newborn screening programs
Published: Jan 14, 2022
Tagged in: Newborn Screening, Access to Diagnostics
NORD submits comments in response to NIH Request for Information: Developing Consent Language for Future Use of Data and Biospecimens
Published: Sep 29, 2021
Tagged in: Research, Newborn Screening
NORD and 21 Other Organizations Send Letter to Senate Labor, HHS Appropriations Subcommittee Regarding Increased Funding for Newborn Screening
Published: Mar 9, 2021
Tagged in: Appropriations, Newborn Screening
NORD and 21 Other Organizations Send Letter to House Labor, HHS Appropriations Subcommittee Regarding Increased Funding for Newborn Screening
Published: Mar 9, 2021
Tagged in: Appropriations, Newborn Screening
