We’re all human, but we’re not all the same. Often, our differences — like age, lifestyle habits, or where we live — can reveal important insights about our health.
The National Institutes of Health (NIH) All of Us Research Program collects and makes available data that can help researchers understand more about why people get sick or stay healthy. The All of Us Research Program aims to ensure that everyone who participates in their study is seen, heard, and counted.
Shantelle Little, an All of Us participant, explains why she decided to join the program.
“I think that what’s unique and important about the All of Us Research Program is that there are treatments and medications that don’t work for everyone. And this program is really trying to find out why. They’re looking into lifestyle, your environment, your genetics, to get that answer, and I think that’s important.
I wanted to be part of this program and be involved because I believe it’s important that research reflects the experiences of everyone in our community. And I’m glad this program shares that value.
I would say to anyone who has reservations about joining that you could possibly be a part of medical breakthroughs in the future. Why would you not want to be a part of that?
I’m Shantelle, and I joined for all of us.”
The National Organization for Rare Disorders (NORD®) is proud to partner with NIH and the All of Us Research Program to help encourage people from all communities to join so researchers will have the opportunity to gain valuable insights into their health and possibly discover valuable and life-changing treatments, leading to a healthier future.