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LRLS 2020 Virtual

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Barriers to Rare Disease

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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Find free webinars, fact sheets, infographics and other helpful materials. View resources >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • NORD and MedicAlert Foundation Team Up to Protect and Empower the Rare Disease Community

    “Partnership of nonprofits will help ensure those with rare diseases receive fast and appropriate care in an emergency”

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  • Actor/Comedian Bob Saget Shares Show Your Stripes Message for Rare Disease Day

    “While recognized for his role as Danny Tanner on the hit sitcom “Full House,” his personal connection to the rare community is less well known.”

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  • NORD’s Pamela Gavin Interviewed on Health Equity by PharmaBoardroom for Rare Disease Day

    “PharmaBoardroom spoke to Pamela K. Gavin, NORD’s Chief Strategy Officer, to get her insights into the importance of ‘health equity’ and how NORD is working to achieve it for rare disease patients.”

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  • NORD’s Debbie Drell Interviewed on “Connecting ALS” Podcast for Rare Disease Day

    “Showing Our Stripes for Rare Disease Day episode touched on storytelling, the origins of Rare Disease Day, NORD's Show Your Stripes campaign, and more”

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