Published September 24, 2024 by NORD
September 24, 2024 The National Organization for Rare Disorders (NORD) applauds the House of Representatives for passing the Give Kids a Chance Act, a major step toward providing more opportunities …
Read morePublished September 18, 2024 by NORD
WASHINGTON, D.C., September 18, 2024 — Today, members of the House Energy & Commerce Committee unanimously voted to advance out of Committee the Give Kids a Chance Act (H.R. 3433), …
Read morePublished April 16, 2024 by NORD
Since NORD launched Project RDAC in 2020, Mississippi becomes the 28th state to establish an RDAC to better focus public policy efforts for people living with rare diseases. JACKSON, MS, …
Read morePublished October 13, 2022 by NORD
New initiative seeks to identify gaps experienced by patients and caregivers in underrepresented communities along their rare disease diagnosis and treatment journey Washington, DC, October 13, 2022— Today, the Rare Disease …
Read morePublished September 30, 2022 by NORD
September 30, 2022, Washington, DC – Following the passage of H.R 6833, Peter L. Saltonstall, President and CEO of the National Organization for Rare Disorders (NORD), issued the following statement: …
Continue reading “NORD Statement on User Fee Reauthorization and Continuing Resolution”
Read morePublished September 28, 2022 by NORD
Washington, DC, September 28, 2022— This week, the rare disease community will celebrate the fourth annual Rare Cancer Day. Spearheaded by the National Organization for Rare Disorders (NORD®) Rare Cancer …
Continue reading “Rare Cancer Day 2022 Showcases Critical Community Awareness and Advocacy”
Read morePublished September 21, 2022 by NORD
Since 1989, NORD has awarded over 200 grants totaling over $9 million in approved funding September 21, 2022, Washington, DC – Today, the National Organization for Rare Disorders (NORD®) announced …
Continue reading “NORD Opens Applications for Three New Rare Disease Research Grants”
Read morePublished September 15, 2022 by NORD
C-Path, NORD and FDA hosted an annual workshop September 13-14 to spotlight the impact of their innovative data and analytics platform on rare disease drug development TUCSON, Ariz. and WASHINGTON, …
Read morePublished August 25, 2022 by NORD
C-Path, NORD and FDA to host annual workshop September 13-14 to highlight the impact of their innovative data and analytics platform on rare disease drug development TUCSON, Ariz. and WASHINGTON, …
Read morePublished August 18, 2022 by NORD
NORD’s annual rare disease conference on October 17 and 18 in Washington, DC will showcase two days of insightful speakers, discussions, and in-person connection WASHINGTON, DC, August 18, 2022 – The …
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