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September 26, 2017

TOPIC: Advocacy, Featured News, Patients & Members

NORD Issues Statement on Senate Leadership’s Recent Update on “Graham-Cassidy” Proposal

Posted at September 9, 2017 06:09 pm by Christina Jensen

Washington, D.C., September 26, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement regarding the latest effort to repeal and replace the Affordable Care Act:

“Senate Leadership announced today that they will not proceed with a vote on the most recent attempt to repeal and… Read More

September 26, 2017

TOPIC: Advocacy, Get Involved, Sticky Posts for Homepage

Protecting Your Healthcare Coverage

Posted at September 9, 2017 10:52 am by Christina Jensen
daysofaction-nord-homepage-sticky

The new administration and Congress are re-examining the United States health insurance system with the goal of repealing the Affordable Care Act, and replacing it with a new system.

Before the Affordable Care Act was enacted in 2010, rare disease patients faced discriminatory insurance practices due to their pre-existing condition. Patients were denied coverage to vital therapies and specialists, and… Read More

September 19, 2017

TOPIC: Advocacy, Featured News, Get Involved, Patients & Members, Press Releases

NORD Issues Statement Opposing the “Graham-Cassidy” ACA Replacement Plan

Posted at September 9, 2017 01:20 pm by Christina Jensen

The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement opposing the “Graham-Cassidy” plan to repeal and replace the Affordable Care Act (ACA):

“The Senate is currently considering a proposal put forward by Senators Graham, Cassidy, Heller, and Johnson that would repeal and replace the Affordable… Read More

September 14, 2017

TOPIC: Advocacy

Nearly 140 Patient Organizations Support the Orphan Drug Tax Credit

Posted at September 9, 2017 03:17 pm by Christina Jensen

Today, NORD joined nearly 140 patient organizations in sending a letter to Congress in support of the Orphan Drug Tax Credit (ODTC). We are extremely grateful to all those organizations that joined us and lent their support. It is vital that the Orphan Drug Tax Credit remains in place, and the rare disease patient community will continue to fight… Read More

August 21, 2017

TOPIC: Advocacy, Featured News, Medical

NORD Issues Statement in Response to the Signing by President Trump of the Food and Drug Administration Reauthorization Act of 2017

Posted at August 8, 2017 02:33 pm by Christina Jensen

Washington, D.C., August 21, 2017Peter L. Saltonstall, President and CEO of the National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, today issued the following statement in response to the signing by President Trump of the Food and Drug Administration Reauthorization Act of 2017:

“We thank President Trump for signing… Read More