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December 2, 2017

TOPIC: Advocacy, Featured News

NORD Issues Statement in Response to Senate Vote on the Orphan Drug Tax Credit

Posted at December 12, 2017 10:52 am by Christina Jensen
Washington, D.C., December 2, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response to the Senate passage of its Tax Cuts and Jobs Act:
“Today, the Senate voted to substantially diminish the Orphan Drug Tax Credit as part of its Tax Cuts and… Read More

November 28, 2017

TOPIC: Advocacy, Events, Press Releases

Rare Disease Advocates Host a Save the Orphan Drug Tax Credit Rally

Posted at November 11, 2017 11:20 am by Jennifer Huron

Patients speak out as Congress moves forward with a tax bill that would negatively impact individuals with rare diseases

Washington, D.C., November 28, 2017 –  Today, the National Organization for Rare Disorders (NORD) is hosting a Save the Orphan Drug Tax Credit Rally for the rare disease community in response to the tax reform bill being debated in… Read More

November 20, 2017

TOPIC: Advocacy, Featured News

Statement by 91 Patient Organizations in Opposition to the House of Representatives’ Repeal of the Orphan Drug Tax Credit

Posted at November 11, 2017 12:00 pm by Christina Jensen

Washington, D.C., November 20, 2017 – “Last week, the House of Representatives voted to repeal the Orphan Drug Tax Credit (ODTC) as part of the Tax Reform and Jobs Act (H.R.1). Our organizations, which collectively represent millions of individuals with rare diseases, are disappointed and dismayed by this harmful repeal.

The Orphan Drug Tax Credit has proven to be one… Read More

November 14, 2017

TOPIC: Advocacy, Featured News, Get Involved

Statement by 36 Patient Organizations in Opposition to Senate’s Proposed Weakening of the Orphan Drug Tax Credit

Posted at November 11, 2017 11:48 am by Christina Jensen

Washington, D.C., November 14, 2017 – “Today, the Senate Finance Committee continues its consideration of the Tax Cuts and Jobs Act. Our organizations, which collectively represent millions of individuals with rare diseases, stand united in opposition to the Senate Finance Committee’s proposal to substantially weaken the Orphan Drug Tax Credit (ODTC).

The Orphan Drug Tax Credit… Read More

November 10, 2017

TOPIC: Advocacy, Featured News, Industry, Patients & Members, Research

NORD Issues Statement in Response to Senate Finance Committee’s Proposal to Weaken the Orphan Drug Tax Credit

Posted at November 11, 2017 02:26 pm by Christina Jensen

Washington, D.C., November 10, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response to the release of the Senate Finance Committee’s proposal to substantially weaken the Orphan Drug Tax Credit (ODTC) within its Tax Cuts and Jobs Act:

“On behalf of the 30 million… Read More