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March 15, 2017

TOPIC: Advocacy, Press Releases

NORD Issues Statement Opposing the Preserving Employee Wellness Programs Act (H.R.1313)

Posted at March 3, 2017 10:14 am by Jennifer Huron

Washington, D.C., March 15, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement opposing the Preserving Employee Wellness Programs Act (H.R.1313):

“Last week, the House Committee on Education and the Workforce voted to advance the Preserving Employee Wellness Programs Act (H.R.1313). This bill exempts employee… Read More

March 8, 2017

TOPIC: Advocacy, Press Releases

NORD Issues Statement as House Committees Review the American Health Care Act

Posted at March 3, 2017 10:27 am by Jennifer Huron

Washington, D.C., March 8, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in advance of today’s hearings on the American Health Care Act:

“Monday evening, House Republicans released their long-awaited Affordable Care Act (ACA) replacement package called the American Health Care Act (AHCA). This… Read More

March 7, 2017

TOPIC: Advocacy, Press Releases

NORD Issues Statement on Release of the American Health Care Act

Posted at March 3, 2017 11:18 am by Jennifer Huron

Washington, D.C., March 7, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response to yesterday’s release of the American Health Care Act:

“Yesterday evening, House Republicans released the American Health Care Act, their proposed replacement to the Affordable Care Act. NORD is in… Read More

March 6, 2017

TOPIC: Advocacy, Press Releases

Eleven Major Patient Groups Outline Joint Position on Health Care Reform

Posted at March 3, 2017 02:50 pm by Jennifer Huron

Washington, D.C., March 6, 2017 – A coalition of eleven nonpartisan patient groups today laid out a joint set of goals they want Congress to focus on as it considers changes to the Affordable Care Act. The coalition includes these organizations: American Cancer Society Cancer Action Network, American Diabetes Association, American Heart Association, American Lung Association, Cystic Fibrosis Foundation,… Read More

March 1, 2017

TOPIC: Advocacy, Press Releases

NORD Issues Statement on President Trump’s Address to Congress

Posted at March 3, 2017 10:57 am by Jennifer Huron

NORD Issues Statement on President Trump’s Address to Congress

Washington, D.C., March 1, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response to President Trump’s first speech to Congress:

“Yesterday evening, President Trump recognized Rare Disease Day and the 30 million Americans… Read More