December 3, 2019
TOPIC: Featured News, Patient Stories, Patients & Members
NORD’s Work with FDA Gives Patients a Chance to Be Heard in Drug Development
Posted at December 12, 2019 08:00 am by Laura Mullen
By Debbie Drell, Director of Membership
My sister was diagnosed with a rare disease, pulmonary hypertension, in September of 1998. At some point during her diagnosis, she was told she wouldn’t live to see her 30th birthday. She was 28. There was one drug recently approved for her disease, and while it… Read More
