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May 4, 2018

TOPIC: Advocacy, Featured News, Patient Stories, Patients & Members

35 Ways and Growing: NORD’s Service to the Rare Disease Community

Posted at May 5, 2018 11:10 am by Laura Mullen

For 35 years, NORD has been leading the fight to improve the lives of patients and families with rare diseases. We do this by supporting patients and organizations, accelerating research, providing education, disseminating information, raising public awareness, and driving public policy. The following are 35 examples of how NORD provides service to all of the rare disease community, including… Read More

April 25, 2018

TOPIC: Events, Featured News, Get Involved, Medical, Patient Stories, Patients & Members

Robert Campbell, Jr., M.D.: 2018 Lifetime Achievement Award Honoree

Posted at April 4, 2018 01:24 pm by Christina Jensen

Dr. Robert M. Campbell, Jr. is Director of the Center for Thoracic Insufficiency Syndrome (CTIS) and an Attending Physician in the Division of Orthopaedic Surgery at Children’s Hospital of Philadelphia (CHOP). He is best… Read More

April 25, 2018

TOPIC: Advocacy, Featured News, Get Involved, Patient Stories, Patients & Members

Estelle Benson, Founder of GBS|CIDP Foundation International: Abbey S. Meyers Leadership Award Honoree

Posted at April 4, 2018 01:15 pm by Christina Jensen

The GBS|CIDP Foundation International, one of the first member organizations of NORD, works towards a future when no one with Guillain-Barre syndrome… Read More

April 25, 2018

TOPIC: Featured News, Get Involved, Industry, Medical, Patient Stories

Richard Pazdur, M.D.: 2018 Public Health Leadership Award Honoree

Posted at April 4, 2018 01:07 pm by Christina Jensen

Richard Pazdur, M.D. is the Director of the Food and Drug Administration’s Oncology Center of Excellence (OCE), which leverages the combined skills of the FDA’s regulatory scientists and reviewers with expertise in drugs, biologics and devices to expedite the development of novel cancer products. In his role as director of the OCE, Dr. Pazdur is responsible for leading the… Read More

April 25, 2018

TOPIC: Advocacy, Featured News, Get Involved, Patient Stories, Patients & Members

Patrick Dunegan: 2018 Rare Impact Award Honoree

Posted at April 4, 2018 01:00 pm by Christina Jensen

Patrick Dunegan and his wife, Jennifer, met at church, spending time together serving their local community as Kentucky Colonels and through volunteer work with the Jewish Hospital of Louisville. Each Friday, Patrick and Jennifer volunteer at… Read More