TOPIC: Patient Stories
Earlier this year, NORD launched the first-of-its-kind Rare Caregiver Respite Program, designed to enable caregivers to take a much-deserved respite. Beth Pruitt, caregiver for her daughter and one of the first to participate in the new program, shared how she will utilize the respite.
“My daughter, Danielle, and I travel to visit… Read More
TOPIC: Patient Stories
The following story was submitted by Kayte and Ashley in honor of July’s Rare Spotlight, Gastroschisis. In this story, Kayte and Ashley reflect on their journey with the condition.
When I received my daughter Ashley’s gastroschisis diagnosis in 2005, there were no options available for support. This was my first pregnancy and… Read More
TOPIC: Patient Stories
The following story was submitted by Nicole in honor of July’s Rare Spotlight, Gastroschisis.
In this story, Nicole reflects on her difficult journey with the condition; an outlook her doctor’s were not expecting.
I’m a 38 year-old woman who was born with gastroschisis, a
TOPIC: Patient Stories
Earlier this year, NORD launched the first-of-its-kind Rare Caregiver Respite Program, designed to enable caregivers to take a much-deserved respite. Leah Schust, caregiver for her young son and one of the first to participate in the new program, shared how she recently spent her break.
“I was asked to be in my… Read More
TOPIC: Patient Stories
In May, NORD launched the first-of-its-kind Rare Caregiver Respite Program, designed to enable caregivers to take a much-deserved respite. Debra Barnum, one of the first caregivers to participate in the new program, shared how she recently spent her break.
“I was able to meet and have dinner with… Read More
