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August 7, 2019

TOPIC: Featured News, Press Releases

FUNDED BY FDA, C-PATH and NORD TO LAUNCH RARE DISEASE DATA ANALYTICS PLATFORM

Posted at August 8, 2019 10:37 am by Christina Jensen

 

The collaborative project between the organizations will kick off at a launch meeting in September and will aim to reduce barriers for the development of new treatments and cures for rare diseases.

 

TUCSON, Ariz. and WASHINGTON, August 7, 2019 Read More

July 31, 2019

TOPIC: Featured News, Press Releases

2019 NORD Rare Summit to Feature Caregivers Who Have Moved from Inspiration to Action

Posted at July 7, 2019 12:41 pm by Christina Jensen

Washington, DC, July 31, 2019—The National Organization for Rare Disorders (NORD)®, the leading independent nonprofit organization representing the over 25 million Americans with rare diseases, has announced the Patient/Caregiver Opening Address speakers for the 2019 NORD Rare Diseases & Orphan Products Breakthrough Summit, to be held October 21-22 in Washington, DC.

The NORD Rare Summit is the largest and… Read More

June 18, 2019

TOPIC: Featured News, Medical, Press Releases

NORD Launches Digital Education Initiative with PlatformQ Health

Posted at June 6, 2019 09:51 am by Christina Jensen

New program by the trusted voice and leader in the rare disease community aims to increase clinician preparedness and improve the care of patients living with rare diseases

 

BOSTON, MA and WASHINGTON, DC, June 18, 2019 – The National Organization for Rare Disorders (NORD)Ⓡ, the leading independent nonprofit organization representing the 25 to 30 million Americans living with… Read More

June 3, 2019

TOPIC: Featured News, Patient Stories, Patients & Members, Press Releases, Research, Sticky Posts for Homepage

NORD AND TRIO HEALTH PUBLISH NEW BOOK TO PROVIDE CRITICAL PATIENT INSIGHTS INTO THE BURDEN OF LIVING WITH AND TREATING RARE DISEASES

Posted at June 6, 2019 05:33 am by Christina Jensen

Real-world evidence and compelling case studies bring to life the challenges facing the estimated 30 million Americans fighting to live better with rare disorders

Washington, DC, June 3, 2019—The National Organization for Rare Disorders® (NORD), the leading independent nonprofit organization representing the estimated 30 million Americans living with… Read More

May 10, 2019

TOPIC: Featured News, Patients & Members, Press Releases

National Gathering of the Rare Disease Community and Health Professionals Launched with 2019 Living Rare, Living Stronger | NORD Patient & Family Forum Featuring the Rare Impact Awards

Posted at May 5, 2019 10:46 am by Laura Mullen

Danbury, CT, December 3, 2018 – The National Organization for Rare Disorders (NORD) has announced a meeting for patients, caregivers and the medical community. The 2019 Living Rare, Living Stronger NORD Patient & Family Forum will take place June 21 – 23 in Houston, Texas. In addition, the 2019 Rare Impact Awards… Read More