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September 19, 2019

TOPIC: Featured News, Press Releases

Innovative Data and Analytics Platform to Accelerate Drug Development for Rare Diseases

Posted at September 9, 2019 04:46 pm by Laura Mullen

 

Launched by C-Path and NORD through an FDA grant, the goal of the new platform is to accelerate the development of cures by addressing the need to better characterize rare diseases.

 

TUCSON, Ariz. and WASHINGTON, September 19, 2019 — The Critical Path Institute (C-Path) and the National Organization for Rare Disorders® (NORD)… Read More

August 21, 2019

TOPIC: Advocacy, Featured News, Get Involved, Press Releases, Sticky Posts for Homepage

Mark Your Calendars – October 1 is Rare Cancer Day!

Posted at August 8, 2019 09:19 am by Laura Mullen

Washington, DC, August 29, 2019–The National Organization for Rare DisordersⓇ (NORD) has announced a day devoted to raising awareness about rare cancers. Spearheaded by the NORD Rare Cancer Coalition, which is comprised of 24 rare cancer-specific Member Organizations, Rare Cancer Day will be observed on October 1 to highlight the challenges people living with rare cancers face… Read More

August 7, 2019

TOPIC: Featured News, Press Releases

FUNDED BY FDA, C-PATH and NORD TO LAUNCH RARE DISEASE DATA ANALYTICS PLATFORM

Posted at August 8, 2019 10:37 am by Lisa Sencen

 

The collaborative project between the organizations will kick off at a launch meeting in September and will aim to reduce barriers for the development of new treatments and cures for rare diseases.

 

TUCSON, Ariz. and WASHINGTON, August 7, 2019 Read More

July 31, 2019

TOPIC: Featured News, Press Releases

2019 NORD Rare Summit to Feature Caregivers Who Have Moved from Inspiration to Action

Posted at July 7, 2019 12:41 pm by Lisa Sencen

Washington, DC, July 31, 2019—The National Organization for Rare Disorders (NORD)®, the leading independent nonprofit organization representing the over 25 million Americans with rare diseases, has announced the Patient/Caregiver Opening Address speakers for the 2019 NORD Rare Diseases & Orphan Products Breakthrough Summit, to be held October 21-22 in Washington, DC.

The NORD Rare Summit is the largest and… Read More

June 18, 2019

TOPIC: Featured News, Medical, Press Releases

NORD Launches Digital Education Initiative with PlatformQ Health

Posted at June 6, 2019 09:51 am by Lisa Sencen

New program by the trusted voice and leader in the rare disease community aims to increase clinician preparedness and improve the care of patients living with rare diseases

 

BOSTON, MA and WASHINGTON, DC, June 18, 2019 – The National Organization for Rare Disorders (NORD)Ⓡ, the leading independent nonprofit organization representing the 25 to 30 million Americans living with… Read More