Foundation for Ichthyosis & Related Skin Types (FIRST)
PO Box 1067
Lansdale, PA, USA
215-997-9400

2023 Member
About Foundation for Ichthyosis & Related Skin Types (FIRST)

The Foundation for Ichthyosis & Related Skin Types (FIRST) is a voluntary organization dedicated to helping individuals and families affected by the inherited skin diseases collectively called the ichthyoses. The ichthyoses are a group of rare, inherited disorders characterized by abnormally dry, scaly, thickened skin due to abnormalities in the production of the protein keratin. FIRST provides support, information, education, and advocacy for individuals and families affected by ichthyosis. FIRST supports research into the causes, treatment, and ultimate cure for ichthyosis.
Related Rare Diseases:
- Keratitis Ichthyosis Deafness Syndrome
- Cardiofaciocutaneous Syndrome
- Epidermal Nevus Syndromes
- Peeling Skin Syndrome
- Ichthyosis
- Keratolytic Winter Erythema
- Erythrokeratodermia with Ataxia
- Erythrokeratoderma
- Sjögren-Larsson Syndrome
- Multiple Sulfatase Deficiency
- Chanarin-Dorfman Syndrome
- Harlequin Ichthyosis
- Lamellar Ichthyosis
- Ichthyosis Vulgaris
- Keratosis Follicularis Spinulosa Decalvans
- Pityriasis Rubra Pilaris
- Conradi Hünermann Syndrome
- Refsum Disease
- Queratosis folicular
- Tricotiodistrofia
- Ictiosis epidermolítica