New York State Rare Disease Advisory Council Coalition Meeting

EMPOWER CHANGE

Your Voice Matters in Securing a Permanent Rare Disease Advisory Council

New York State established a temporary Rare Disease Working Group in 2019. Join the coalition of rare disease patients, experts, and advocates like you to push lawmakers to make a permanent and robust New York State Rare Disease Advisory Council (RDAC).

• Meet other rare disease community members in your state.
• Discuss the unique needs and challenges that the rare disease community faces.
• Become an active participant in rare disease policy advocacy efforts before your state lawmakers.

Discover Your Role Today! 

Please email [email protected] to request the link for the New York State Rare Disease Advisory Council Coalition Meeting.