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NORD

Upcoming Events

January 2017

WEBINAR: In-Depth look at the 2016 NORD State Policy Report Card

January 24 @ 3:00 pm - 4:00 pm

Please join NORD Rare Action Network team Tuesday, January 24, 2017 at 3:00pm EST for a webinar to take an in-depth look into the recently published 2016 state policy report card. Tim Boyd, Associate Director of State Policy will present on the findings in the report card and discuss what this means for 2017 advocacy initiatives across the US. There will also be a Q & A portion at the end of the presentation. This webinar is open to the…

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March 2017

Los Angeles Marathon

March 19
Los Angeles, CA United States
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Running for Rare, NORD's signature charity marathon team, will be participating in the 2017 Los Angeles Marathon. Click here to apply. About the Team When you join Running for Rare, you are joining a group of individuals who are passionate and committed to an important cause. Running for Rare offers a dynamic platform for our dedicated charity runners to raise funds and increase awareness for the 1 in 10 Americans with rare diseases. Funds raised by Running for Rare pay for…

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April 2017

Boston Marathon

April 17
Boston, MA United States
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Running for Rare, NORD's signature charity marathon team, will be participating in the 2017 Boston Marathon. Applications for this marathon are closed. About the Team When you join Running for Rare, you are joining a group of individuals who are passionate and committed to an important cause. Running for Rare offers a dynamic platform for our dedicated charity runners to raise funds and increase awareness for the 1 in 10 Americans with rare diseases. Funds raised by Running for Rare pay for…

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St. Jude Rock ‘N’ Roll Nashville Marathon

April 29
Nashville, TN United States
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Running for Rare, NORD's signature charity marathon team, will be participating in the 2017 Nashville Marathon. Click here to apply. About the Team When you join Running for Rare, you are joining a group of individuals who are passionate and committed to an important cause. Running for Rare offers a dynamic platform for our dedicated charity runners to raise funds and increase awareness for the 1 in 10 Americans with rare diseases. Funds raised by Running for Rare pay for…

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May 2017

Providence Full and Half Marathon

May 7
Providence, RI United States
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Running for Rare, NORD's signature charity marathon team, will be participating in the 2017 Providence Marathon. Click here to apply. About the Team When you join Running for Rare, you are joining a group of individuals who are passionate and committed to an important cause. Running for Rare offers a dynamic platform for our dedicated charity runners to raise funds and increase awareness for the 1 in 10 Americans with rare diseases. Funds raised by Running for Rare pay for…

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2017 Rare Impact Awards

May 18 @ 6:00 pm - 10:00 pm
Ronald Reagan Building and International Trade Center,
1300 Pennsylvania Ave. NW
Washington, DC 20004 United States
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The 2017 Rare Impact Awards continues NORD’s 31-year tradition of bringing together the entire rare disease community to celebrate those who are making extraordinary contributions to drive progress and help others. The Rare Impact Awards ceremony will be held on Thursday, May 18, 2017 in Washington in the amphitheater of the Ronald Reagan Building and International Trade Center, the largest structure in D.C. and the first and only federal building dedicated to both federal and private use. More than 500…

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October 2017

2017 Rare Diseases and Orphan Products Breakthrough Summit

October 16 @ 8:00 am - October 17 @ 5:00 pm
Marriott Wardman Park,
2660 Woodley Rd NW
Washington, DC 20008 United States
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NORD’s Rare Diseases and Orphan Products Breakthrough Summit is the largest and most meaningful multi-stakeholder event of its kind – historically featuring over 20 speakers from the FDA, participation from over 80 patient organizations and the Pharma/Biotech industry’s foremost experts in orphan product innovation, investment and commercialization. The 2017 Breakthrough Summit is your opportunity to collaborate with the top leaders from the FDA, NIH, industry, patient groups, payers and research institutions to address the progress and innovations in rare disease…

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