To Top
Loading Events

← Back to Events


July 2019

NORD Webinar: Self-Advocacy and Care Coordination

July 24 @ 2:00 pm - 3:00 pm

Do you want to learn how to better advocate for yourself in a healthcare setting? Are you curious how care coordination fits into a successful treatment plan? We will cover these topics and more in a free webinar on July 24 at 2:00pm EDT. Join us as Laran Hyder, Director of Education and Outreach at the Neuroendocrine Tumor Research Foundation (NETRF), explains self-advocacy and how you can develop skills to become a more effective self-advocate. Then, NORD’s own Jill Pollander, Director of…

Find out more »

September 2019

Pyruvate Kinase Deficiency (PKD): Externally-Led Patient Focused Drug Development Meeting

September 20 @ 9:30 am - 3:30 pm
College Park Marriott Hotel & Conference Center  , 3501 University Blvd E.
Hyattsville, MD 20783 United States
+ Google Map

NORD and the Foundation for Rare Blood Diseases (SZB) invite you to an externally-led Patient Focused Drug Development (EL-PFDD) meeting on Pyruvate Kinase deficiency (PKD), taking place Friday, September 20.  If you are a patient, family member or caregiver affected by PKD, this is an important opportunity to have your voice heard.  EL-PFDD meetings provide an opportunity for patients, their families and caregivers to share critical information about the impact of their disease on their daily lives and their experiences…

Find out more »
+ Export Events