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NORD

April 2019

Tweetchat on Rare Relationships, #lovingrarechat

April 22 @ 1:00 pm - 2:00 pm

  Tweetchat Coordinates When: Monday, April 22, 1:00p.m. - 2:00p.m. ET Tweetchat Hashtag: #lovingrarechat Tweetchat Moderator from NORD: @RareDiseases Tweetchat Moderator from Texas Children's: @TexasChildrens About As a part of NORD's mission to improve the lives of the 25-30 million Americans impacted by rare diseases, we are honored to be hosting the 2019 Living Rare, Living Stronger Patient and Family Forum. Happening June 21-23 in Houston, this Forum will provide a valuable opportunity for patients and families to gain practical…

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June 2019

Living Rare, Living Stronger NORD Patient & Family Forum

June 21 @ 6:00 pm - June 23 @ 1:00 pm
Hilton Americas-Houston, 1600 Lamar Street
Houston, TX 77010 United States
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  Join NORD this June for a very special gathering of people living with rare diseases, and the medical professionals working to help improve their lives. Patients and families will gain insights and practical tools through educational sessions and discussions created just for them, with topics to include stress management, gene therapy, insurance and Medicaid access, clinical trials and more.  There will be lots of fun for the kids and adults alike, with a welcome dinner party, games, a wellness…

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