SDS PFDD Meeting EL-PFDD Meeting for Shwachman-Diamond Syndrome: June 4th

SDS PFDD Meeting
EL-PFDD Meeting for Shwachman-Diamond Syndrome

June 4

This meeting is an Externally-led Patient-Focused Drug Development meeting, which is a special type of meeting developed by the FDA to give FDA and other key stakeholders, including medical product developers (pharma/biotech companies), health care providers (doctors), researchers, and the general public, a unique and important opportunity to hear directly from patients and their families/caregivers, and patient advocates about:

• the symptoms that matter most to them,
• the impact the disease has on patients’ daily lives, and
• patients’ experiences with currently available treatments.

More information here: https://www.sdsalliance.org/pfdd