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Virtual Event Virtual Event

Vermont Rare Disease Advisory Council Coalition Meeting

January 13, 2025 @ 6:00 pm - 6:45 pm EST

Virtual Event Virtual Event

EMPOWER CHANGE

Your Voice Matters in Building a Rare Disease Advisory Council

Join the coalition of rare disease patients, experts, and advocates like you to push lawmakers to create a Rare Disease Advisory Council (RDAC) in Vermont.

  • Meet other rare disease community members in your state.
  • Discuss the unique needs and challenges that the rare disease community faces.
  • Become an active participant in rare disease policy advocacy efforts before your state lawmakers.

Discover Your Role Today! 

Please email [email protected] to request the link for the Vermont Rare Disease Advisory Council Coalition meeting.

Details

Date:
January 13, 2025
Time:
6:00 pm - 6:45 pm EST
Event Category:
Event Tags:

Venue

Zoom
National Organization for Rare Disorders