Name: IPPF Pacific Northwest Support Group Meeting
Start: 2026-10-10T16:00:00-04:00
End: 2026-10-10T18:00:00-04:00

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Month

September 2026
2026 Wilson Disease Association Annual Conference

September 25 - September 26

Registration is now open for the 2026 WDA Annual Conference, taking place September 25–26 in Chicago. Co-hosted by Northwestern University Feinberg School of Medicine’s Wilson Disease Center of Excellence and the Wilson Disease Association, the conference will bring together healthcare professionals, researchers, advocates, industry partners, patients, and caregivers from across the Wilson disease community. The …

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October 2026
Living Rare Living Stronger – Virtual Spanish Session October 3rd

October 1 @ 12:00 pm - October 3 @ 2:30 pm EDT

NORD's free virtual event for Spanish-speaking rare disease patients and families (October 3) Registration is now open for NORD’s first #LivingRare virtual event entirely in Spanish! https://bit.ly/4i6JPzG Join us Saturday, Oct. 3, from noon to 2:30 p.m. ET on Zoom for a free event bringing Spanish-speaking rare disease patients, families, and caregivers together for education …

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2nd Annual Oktoberfest – Raise a Stein for a Cause

October 1 @ 4:00 pm - 8:00 pm EDT

Buffalo Creek Brewing, Long Grove, IL 360 Historical Lane, Long Grove, IL, United States

Join community members for an evening of celebration and purpose at our Oktoberfest-themed happy hour! Enjoy authentic German beer, delicious food, live music, and exciting raffle prizes - all while supporting a powerful cause. Last year's inaugural event raised over $50,000 for the National Organization for Rare Disorders (NORD). The Benassi family, alongside business partners …

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Living Rare Living Stronger – Sesión virtual de español 3 de octubre

October 3 @ 12:00 pm - 2:30 pm EDT

Ya está abierta la inscripción para el primer evento virtual #LivingRare de NORD, completamente en español! 🎉 https://bit.ly/4i6JPzG Únase a nosotros el sábado 3 de octubre, del mediodía a las 2:30 pm ET en Zoom para un evento gratuito que reúne a pacientes de enfermedades raras de habla hispana, familias y cuidadores para educación y …

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Pericarditis Alliance Virtual Support Group Every 1st Saturday

October 3 @ 1:00 pm - 2:30 pm EDT

Pericarditis Alliance offers a once a month virtual support group for patients and their families to check in, connect and learn from each other. They invite speakers to talk about topics such as adopting an anti-inflammatory diet and functional medicine. At the end of each meeting, they invite participants to join in a short …

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Pericarditis Alliance – Shares From the Collective hosted by Lisa

October 3 @ 1:00 pm - 2:30 pm EDT Pericarditis Alliance – Shares From the Collective hosted by Lisa

Pericarditis Alliance is so pleased to offer three new monthly virtual support groups for patients and their families to check in, connect, and learn from each other. Registration is open for one month at a time and will be open for each group by the Friday after the previous meeting. Register for each group through …

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Pints for a Purpose

October 3 @ 3:00 pm - 6:00 pm EDT

Great American Beer Hall, Medford, MA

Click to enlarge image Join in a fun fall afternoon at Great American Beer Hall on October 3 from 3–6 PM! Come hang out, grab a drink, and help celebrate Bridget's TCS New York City Marathon journey while raising money for NORD. We’ll have a signature drink, raffles, food, beer, and plenty of good times. …

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Pericarditis Alliance Support Groups – Pericarditis Under 30 hosted by Alexa

October 4 @ 12:00 pm - 1:30 pm EDT Pericarditis Alliance Support Groups – Pericarditis Under 30 hosted by Alexa

Pericarditis Alliance is so pleased to offer three new monthly virtual support groups for patients and their families to check in, connect, and learn from each other. Registration is open for one month at a time and will be open for each group by the Friday after the previous meeting. Register for each group through …

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Scientific Seminar – International Pemphigus and Pemphigoid Foundation

October 5 @ 11:00 am - 12:15 pm EDT

Join the International Pemphigus and Pemphigoid Foundation on Monday, October 5th at 11:00 AM - 12:15 PM EST/ Central European Time: 5:00 PM - 6:15 PM (17:00 - 18:15) for our next Scientific Seminar. In close cooperation with Drs. Ralf Ludwig & Katja Bieber of the Lübeck Institute for Experimental Dermatology at the University of …

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CMTA 2026 Patient and Research Summit

October 9 - October 10

The Charcot-Marie-Tooth Association (CMTA) will host its 2026 Patient and Research Summit on October 9-10, 2026, at the Grand Bay Hotel San Francisco, 223 Twin Dolphin Dr., Redwood City, CA 94065. The two-day event brings together people living with Charcot-Marie-Tooth disease (CMT), caregivers, researchers, clinicians, and industry partners for education, research updates, and community connection. …

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Charcot-Marie-Tooth Association (CMTA) 2026 Patient & Research Summit

October 9 - October 11

The Charcot-Marie-Tooth Association (CMTA) 2026 Patient & Research Summit brings together people living with Charcot-Marie-Tooth disease (CMT), caregivers, researchers, clinicians, and industry partners for two days of education and community. Whether you are newly diagnosed or have lived with CMT for years, the Summit offers practical information and opportunities to engage with the CMT community. …

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The Pulmonary Hypertension Wellness Expo

October 10

The Pulmonary Hypertension Wellness Expo is PHA's newest free, educational event for the PH community. The PH Wellness Expo is set for Saturday, Oct. 10, from 11 a.m. to 3 p.m. PDT in San Francisco. Attend the PH Wellness Expo to learn more about PH and it's associated conditions; access free PH-focused resources from local, …

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IPPF Pacific Northwest Support Group Meeting

October 10 @ 4:00 pm - 6:00 pm EDT

Join the IPPF for their next IN PERSON Pacific Northwest Support Group Meeting on October 10th at the Seattle Public Library. Living with pemphigus or pemphigoid is hard enough, but when you feel alone it seems even harder. There's something special about connecting with people who really know what you're going through. You are not …

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September 2026

October 2026

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