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Calendar of Events

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2 events,

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Externally Led Patient-Focused Drug Development (EL-PFDD) Meeting on Sarcoidosis w/ the FDA.

Virtual Event Virtual Event
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Vermont Rare Disease Advisory Council Coalition Meeting

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2 events,

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Rare Action on the Road – Providence

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Expert Series: Pyruvate Dehydrogenase Complex Deficiency Essentials: including current trials/research and prospects for newborn screening

3 events,

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Cardiac Neurodevelopmental Family Symposium

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Rare Action on the Road – Burlington

1 event,

1 event,

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1 event,

1 event,

1 event,

Virtual Event Virtual Event
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Vermont Rare Disease Advisory Council Coalition Meeting

1 event,

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MPN Pathways: Empowered Voices in Research (Session 2)- The Life Cycle of Drug Development

4 events,

Target Cancer Foundation’s Think Tank on Advancing Precision Medicine in Rare Cancers on November 20 in Boston!

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The Think Tank on Advancing Precision Medicine in Rare Cancers

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Sesiones de escucha para pacientes y cuidadores latinos de enfermedades raras

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Listening Sessions for Latino Rare Disease Patients & Caregivers

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National Organization for Rare Disorders