The Gorlin Syndrome Alliance Patient Conference only happens every two years, and they are excited to reunite with the community June 20-22 in Orlando! People who live with a rare, hereditary cancer often say they have never met anyone outside their family who share their diagnosis: conferences provide a space to connect, learn and leverage …

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The Sisters' Hope Foundation externally-led patient focused drug development (EL-PFDD) session will be held on Friday June 20th, 2025. Information and insights gained during this meeting will be summarized in the "Voice of the Patient" report that will be published for public use. Register to participate in person or virtually through Zoom. Please contact Erin …

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Join the IPPF @healourskin on June 23rd for a Patient Education Webinar on Corticosteroids for Pemphigus and Pemphigoid and How to Manage Side Effects with Dr. Rachel Lipman, MD, Dermatologist and Internist at Northwestern Memorial Hospital in Chicago, Illinois. For more information and to register online, visit: https://zoom.us/webinar/register/WN_ixSN-AsSTJO-ZLh78g_P_Q

Connect Virtually with Other Pemphigus and Pemphigoid Patients and Caregivers in the Southern California area on June 24th. Living with pemphigus or pemphigoid is hard enough, but when you feel alone it seems even harder. You are not alone.

United for Progress: A New Chapter in Sarcoidosis Join the FSR Global Virtual Summit | June 28–29 Learn the latest care Build global connections Get tools to thrive https://loom.ly/aLYtjh0 #FSR2025 #SarcoidosisSummit #StopSarcoidosis   Each person’s sarcoidosis story is unique. The FSR’s Virtual Global Sarcoidosis Summit is a virtual global arena offering a library of resources, …

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rideATAXIA Hometown offers teammates the opportunity to ride individually or host local events for their community as part of the rideATAXIA Program Series. rideATAXIA Hometown Boston is proud to be one of the 2024 events! We invite you to join our local Boston committee for a family-friendly ride along the original battlefields where the Revolutionary …

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Connect Virtually with other Pemphigus and Pemphigoid Patients and Caregivers in the Tri-State New York area on July 1st. Living with pemphigus or pemphigoid is hard enough, but when you feel alone it seems even harder. You are not alone! Register at: https://fundraise.pemphigus.org/groups_tristate_ny_July_2025