Calling all PKU researchers! The National PKU Alliance annual grant research program is now open. Visit https://npkua.grantplatform.com/ to view the request for proposals and to apply. The deadline is Monday, …
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🎙️ MPN Pathways: Communicating with Researchers & Understanding Clinical Trials Date: Thursday, June 17, 2025Time: 5:00–6:00 PM CTFormat: Live Zoom WebinarRegister here: Sign Up Now Join the next session of …
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Each year, UMDF’s Mitochondrial Medicine Conference brings together the best minds in mitochondrial medicine and the patients we serve. With over 700 attendees representing almost every state in the U.S. …
Dates: June 20–22, 2025Location: Holiday Inn Orlando – Disney Springs, FLRegistration: Register here Join us for the Gorlin Syndrome Alliance’s 2025 National Conference, a pivotal event for individuals and families …
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The Sisters' Hope Foundation externally-led patient focused drug development (EL-PFDD) session will be held on Friday June 20th, 2025. Information and insights gained during this meeting will be summarized in …
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Survivor Support Group – Monthly Virtual Meetings Dates: Third Saturday of each monthTime: 3:00 PM ETLocation: Online via ZoomRegistration: Register here The Raymond A. Wood Foundation's Survivor Support Group offers …
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🩺 2025 SNMMI Patient Education Day PheoPara Alliance Date: Sunday, June 22, 2025Location: New Orleans Convention Center, New Orleans, LAFormat: Hybrid (In-person & Virtual)Registration: Register here Join the Society of …
Connect Virtually with Other Pemphigus and Pemphigoid Patients and Caregivers in the Southern California area on June 24th. Living with pemphigus or pemphigoid is hard enough, but when you feel …
NORD® Living Rare, Living Stronger® in Georgia is a one-day event to educate and support patients, caregivers, and their families with the focus in reducing or eliminating their burdens and …
2025 Cholangiocarcinoma Portland Symposium The 2025 Portland Cholangiocarcinoma Symposium will convene in Portland and draw together leading experts, researchers, healthcare professionals, patients, and advocates. This event promises to be a …
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United for Progress: A New Chapter in Sarcoidosis Join the FSR Global Virtual Summit | June 28–29 Learn the latest care Build global connections Get tools to thrive https://loom.ly/aLYtjh0 #FSR2025 …
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rideATAXIA Hometown offers teammates the opportunity to ride individually or host local events for their community as part of the rideATAXIA Program Series. rideATAXIA Hometown Boston is proud to be …
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