The 2025 CMTA Patient & Research Summit will be held on Friday, September 5th – Sunday, September 7th at the Embassy Suites at Indianapolis Airport in Plainfield, Indiana: https://summit.cmtausa.org The CMTA Summit offers life-improving presentations on living well with CMT and will provide a comprehensive update on CMTA’s Strategy To Accelerate Research (STAR) programs and …

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🔬 DTRF International Research Workshop Date: Friday, September 12, 2025Location: Northwestern Medicine: Prentice Women’s Hospital, Chicago, ILDetails: Designed for researchers and medical professionals, this workshop presents the latest information on desmoid treatments and research. It serves as a forum to share findings, develop collaborations, and identify research priorities. In-person and virtual attendance options are available.🔗 …

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Date: Saturday, September 13, 2025Location: Northwestern Medicine: Prentice Women’s Hospital, Chicago, ILDetails: Join us for the cornerstone of the Together We Will Weekend. This meeting features educational presentations by clinicians and researchers, a talk by a desmoid patient, and ample opportunities for networking. Content is tailored for patients, caregivers, and physicians. The event will be …

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In-person in Toronto, Canada, with virtual attendance options  Join us for the 2025 International Scientific Symposium, taking place from September 17-21, 2025 in Toronto, Canada—a hybrid event designed specifically for healthcare professionals. This symposium will bring together the world’s leading researchers, clinicians, and experts in Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) to share groundbreaking discoveries, foster collaboration, …

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