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Advocating for Yourself: Navigating the Healthcare System for the Undiagnosed Community

1 event,

Virtual Event Virtual Event
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International Pemphigus and Pemphigoid Foundation May 1st Patient Education Webinar on “Biopsies Save Lives: Pemphigus, Pemphigoid, and Oral Care”

0 events,

1 event,

Adrenal Insufficiency United LA Lunch and Learn

Adrenal Insufficiency United LA Lunch and Learn

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2 events,

National Health Council (NHC) 2025 Science of Patient Engagement Symposium

National Health Council (NHC) 2025 Science of Patient Engagement Symposium

Virtual Event Virtual Event
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Externally-Led Patient Focused Drug Development Meeting on Autoimmune Pulmonary Alveolar Proteinosis (EL-PFDD aPAP Virtual Meeting)

1 event,

1 event,

2025 International MSA Congress, May 9–11 in Boston, MA

2025 International MSA Congress, May 9–11 in Boston, MA

2 events,

Family Picnic with the Connecticut Rare Action Network! 🌳

Family Picnic with the Connecticut Rare Action Network! 🌳

1 event,

1 event,

2 events,

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NORD Grassroots Advocacy Training: Protect Medicaid

1 event,

1 event,

1 event,

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1 event,

CureDuchenne FUTURES National Conference

CureDuchenne FUTURES National Conference

1 event,

1 event,

1 event,

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1 event,

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Pathways to Care Expo in Forth Smith, AR

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