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Requests for Proposals

The NORD Research Grant Program provides seed-money grants to academic scientists for scientific and/or clinical research. The hope is that these studies will ultimately lead to new diagnostics, treatments, and/or cures for rare diseases. NORD’s program provides grants for the study of diseases for which there are few other sources of funding. Grants are made possible by allies in the rare disease community that have generously donated into NORD’s research fund. Each year, Lundbeck raises awareness and support, in partnership with NORD, through their annual Raise Your Hand Campaign, which runs during the month of February to support Rare Disease Day. We are proud to acknowledge Lundbeck’s charitable donation for NORD’s 2018 Rare Disease Research Grant cycle.

NORD Research Grants

NORD’s Rare Disease Research Grant Program is accepting proposals for the study of Alveolar Capillary Dysplasia with Misalignment of the Pulmonary Veins (ACD/MPV). All U.S. and international researchers interested in studying this disease are encouraged to apply by Friday, September 28, 2018.

  • Alveolar Capillary Dysplasia with Misalignment of the Pulmonary Veins (ACD/MPV) – One (1) grant of up to $50,000 U.S. for scientific and/or clinical research studies related to Alveolar Capillary Dysplasia with Misalignment of the Pulmonary Veins (ACD/MPV). Download RFP.

Additional Funding

NORD’s member organizations are invited to share information on this page about their research funding opportunities. Researchers who have questions about programs listed below should contact the organization sponsoring the RFP. In order to have information posted on this page, please email

Lymphangiomatosis & Gorham’s Disease Alliance (LGDA)
LGDA has made available applications for funding for the study of Lymphangiomatosis and Gorham’s Disease. The period of award and level of funding is unique to each funded project, and depends wholly on the scope and requirements of each approach.
More information here.

Requests for Proposals

Medical Advisors

All medical decisions guiding the NORD Research Grant Program are made by NORD’s Scientific and Medical Advisory Committee. View the committee >