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Requests for Proposals

The NORD Research Grant Program provides seed-money grants to qualified investigators for scientific and/or clinical research. The hope is that these studies ultimately will lead to new diagnostics, treatments, and/or cures for rare diseases. NORD’s program provides grants for the study of diseases for which there are few other sources of funding. Grants are made possible through the generosity of allies in the rare disease community and supporters who have donated into NORD’s research fund.

Over the past thirty years, NORD grants have led to the development of two FDA-approved treatments and numerous peer-reviewed publications. More than 150 grants have been awarded representing over $8 million in approved funding since the program’s launch in 1989.

Additional Funding

NORD’s member organizations are invited to share information on this page about their research funding opportunities. Researchers who have questions about programs listed below should contact the organization sponsoring the RFP. In order to have information posted on this page, please email

Lymphangiomatosis & Gorham’s Disease Alliance (LGDA)
LGDA has made available applications for funding for the study of Lymphangiomatosis and Gorham’s Disease. The period of award and level of funding is unique to each funded project, and depends wholly on the scope and requirements of each approach.
More information here.

Neuroendocrine Tumor Research Foundation
The Neuroendocrine Tumor Research Foundation (NETRF) has announced a new round of research grant opportunities. NETRF welcomes proposals addressing gastrointestinal and pancreatic neuroendocrine tumors (NETs) and continues to have a special interest in lung NETs. Grants are open to researchers anywhere in the world.
More information here.


Requests for Proposals

Medical Advisors

All medical decisions guiding the NORD Research Grant Program are made by NORD’s Scientific and Medical Advisory Committee. View the committee >