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Requests for Proposals

The NORD Research Grant Program provides seed-money grants to academic scientists for scientific and/or clinical research. The hope is that these studies will ultimately lead to new diagnostics, treatments, and/or cures for rare diseases. NORD’s program provides grants for the study of diseases for which there are few other sources of funding. Grants provided through the NORD program are made possible by donations from individuals and organizations to restricted research funds at NORD.


NORD 2016 Research Grants

NORD encourages all U.S. and international researchers interested in studying these diseases to consider applying. The 2016 NORD RFP application deadline has passed. Grant recipients will be announced at the end of February 2017 and listed here.

  • Alveolar Capillary Dysplasia with Misalignment of the Pulmonary Veins – One (1) grant of up to $50,000, for scientific and/or clinical research studies related to Alveolar Capillary Dysplasia (ACD/MPV).
  • Appendix Cancer and Pseudomyxoma Peritonei – Two (2) grants of up to $50,000 for scientific and/or clinical research studies related to Appendix Cancer and/or Pseudomyxoma Peritonei (PMP). 
  • Autoimmune Polyglandular Syndrome Type 1 – One (1) grant of up to $100,000 for scientific and/or clinical research studies related to Autoimmune Polyglandular Syndrome Type 1 (APS Type 1). 
  • Homocystinuria – One (1) grant of up to $30,000 for scientific and/or clinical research studies related to Homocystinuria due to Cystathionine Beta-Synthase Deficiency. 
  • Malonic Aciduria – One (1) grant of up to $30,000 for scientific and/or clinical research studies related to Malonic Aciduria. 
  • Stiff Person Syndrome – One (1) grant of up to $30,000 for scientific and/or clinical research studies related to Stiff Person Syndrome. 

Additional Funding

NORD’s member organizations are invited to share information on this page about their research funding opportunities. Researchers who have questions about programs listed below should contact the organization sponsoring the RFP. In order to have information posted on this page, please email membership@rarediseases.org

Aplastic Anemia and MDS International Foundation (AAMDSIF)
AAMDSIF has announced that applications are open for 2017 research grants. The deadline for application is February 28, 2017.
More information here.

Galactosemia Foundation
The Galactosemia Foundation encourages and funds research that will increase understanding of galactosemia and/or help families living with galactosemia. Proposals are due Jan 31, 2017 and decisions are planned to be announced April 15, 2017.
More information here.

International Pemphigus & Pemphigoid Foundation
IPPF has made available a seed grant program to encourage and support patient oriented research on pemphigus and pemphigoid. The program is open to applicants currently based in the U.S. and will consist of one-year grants. Letters of intent are due February 28, 2017.
More information here.

Lymphangiomatosis & Gorham’s Disease Alliance (LGDA)
LGDA has made available applications for funding for the study of Lymphangiomatosis and Gorham’s Disease. The period of award and level of funding is unique to each funded project, and depends wholly on the scope and requirements of each approach.
More information here.

The MDS Foundation, Inc.
The MDS Foundation, Inc.’s Young Investigator Grant provides an investigator, aged 40 years or less, the opportunity to initiate, continue or complete a project that focuses on either basic or clinical management into the causation, epidemiology, molecular biology, cytogenetics, morphology, prognosis and treatment of the Myelodysplastic Syndromes.
More information here.

TagetCancer Foundation
TargetCancer Foundation is announcing their first round of rare cancer research grant funding for 2016: $200,000 in new grants supporting innovative rare cancer research, as well as a new program supporting patients facing cholangiocarcinoma.
More information here.

Requests for Proposals

Medical Advisors

All medical decisions guiding the NORD Research Grant Program are made by NORD’s Scientific and Medical Advisory Committee. View the committee >