Cystinosis Foundation, Inc.
Siblings for Significant Change
Sudden Arrhythmia Death Syndromes Foundation
Opsoclonus-Myoclonus Support Network, Inc.
Division of Medical Genetics and Genomics, The Mount Sinai Hospital
Seattle Children’s Hospital
National Healthy Mothers, Healthy Babies Coalition
Li-Fraumeni Syndrome International Registry
National Kidney Foundation Serving Connecticut
Southeastern Regional Genetics Group, Inc.
Your gift today fuels progress in the lab, in clinics, on Capitol Hill and for rare families who can’t wait another year for answers.
Please complete this form to access the requested resource.
Please consider sharing some basic information with us.
