Acid Maltase Deficiency Association

The Acid Maltase Deficiency Association was established in 1995 to assist in funding research and to promote public awareness of Pompe disease. Founded in 1995 and consisting of over 500 members, the association publishes brochures and informational literature, sponsors an annual conference for the scientific community to discuss crucial issues related to Pompe’s disease, and maintains a patient/family registry. This registry is used to disseminate information to affected families about current scientific breakthroughs, dietary information, and other issues vital to daily living. The AMDA also sends out a newsletter and sponsors patient informational teleconference calls.