ARPKD/CHF Alliance

The ARPKD/CHF Alliance is a non-profit, self-help organization dedicated to providing information and support to individuals and families affected by autosomal recessive polycystic kidney disease, a chronic and progressive disease that causes eventual kidney failure and liver abnormalities (congenital hepatic fibrosis). There is no cure, and life-threatening complications may develop soon after birth. Many parents receive the diagnosis before the baby is born. The alliance provides information, networking opportunities, and support for basic and clinical research.