NORD gratefully acknowledges John Shields, NORD Editorial Intern from the University of Notre Dame, and Meral Gunay-Aygun, MD, National Human Genome Research Institute, National Institutes of Health, for assistance in the preparation of this report.
The information in NORD’s Rare Disease Database is for educational purposes only and is not intended to replace the advice of a physician or other qualified medical professional.
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National Organization for Rare Disorders (NORD)
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