Children’s Craniofacial Association (CCA)

About Children’s Craniofacial Association (CCA)

Children’s Craniofacial Association is a national, 501(c)3 nonprofit organization, headquartered in Dallas, Texas. Nationally and internationally, CCA addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions. CCA’s services include providing a list of qualified Craniofacial Centers, family networking, an annual family retreat, financial assistance for food travel and lodging for families who must travel for quality care, and we publish a newsletter and syndrome booklets as well as overviews addressing concerns related to having facial differences. CCA’s mission is to empower and give hope to individuals and families affected by facial differences.

Related Rare Diseases:

• Melnick Needles Syndrome
• Pfeiffer Syndrome
• Shprintzen Goldberg Syndrome
• Hajdu Cheney Syndrome
• Hallermann-Streiff Syndrome
• Megalocornea Intellectual Disability Syndrome
• Ablepharon-Macrostomia Syndrome
• Setleis Syndrome
• Costello Syndrome
• Scott Craniodigital Syndrome
• IRF6-Related Disorders
• Craniofrontonasal Dysplasia
• Orocraniodigital Syndrome
• Gorlin-Chaudhry-Moss Syndrome
• Kenny-Caffey Syndrome
• KBG Syndrome
• Pycnodysostosis
• Summitt Syndrome
• Sakati Syndrome
• Goodman Syndrome
• Ring Chromosome 4
• Simpson-Golabi-Behmel Syndrome
• Chromosome 15 Ring
• Chromosome 18q- Syndrome
• Cleidocranial Dysplasia
• Fryns Syndrome
• Chromosome 18 Ring
• Chromosome 9 Ring
• Binder Type Nasomaxillary Dysplasia
• Jackson-Weiss Syndrome
• Primary Craniosynostosis
• Chromosome 6 Ring
• Frontofacionasal Dysplasia
• Maxillofacial Dysostosis
• Pallister W Syndrome
• Nager Syndrome
• Miller Syndrome
• Marshall Syndrome
• Otopalatodigital Syndrome Type I and II
• Cardiofaciocutaneous Syndrome
• Hyperostosis Frontalis Interna
• Encephalocele
• Fibrous Dysplasia
• Frontonasal Dysplasia
• Penta X Syndrome
• Fraser Syndrome
• Greig Cephalopolysyndactyly Syndrome
• Robinow Syndrome
• ESCO2 Spectrum Disorder
• Pierre Robin Sequence
• Treacher Collins Syndrome
• Aarskog Syndrome
• X-linked Opitz G/BBB Syndrome
• Oral-Facial-Digital Syndrome
• Cerebro Oculo Facio Skeletal Syndrome
• Larsen Syndrome
• Seckel Syndrome
• Rubinstein-Taybi Syndrome
• Moebius Syndrome
• Leprechaunism
• Tricho Dento Osseous Syndrome
• Oculo-Auriculo-Vertebral Spectrum
• Saethre Chotzen Syndrome
• Antley-Bixler Syndrome
• Three M Syndrome
• Cornelia de Lange Syndrome
• Síndrome de Melnick-Needles
• Displasia cleidocraneal
• Trastorno del espectro ESCO2
• Muenke Syndrome
• Síndrome de Muenke
• Síndrome de cefalopolisindactilia de Greig
• Síndrome de Shprintzen-Goldberg
• Síndrome de Simpson-Golabi-Behmel
• Síndrome de Opitz G/BBB ligado al cromosoma X
• Síndrome orofaciodigital
• Pentasomía X
• Síndrome de abléfaron-macrostomía
• Síndrome de Aarskog
• Síndrome de Jackson-Weiss
• Síndrome de Hajdu Cheney
• Bent Bone Dysplasia Syndrome
• Primrose Syndrome