The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
C252 Kandasamy Salai
Tamil Nadu, 600 082 India
The Foundation for Research on Rare Diseases and Disorders (Rare Disease India) is a nonprofit, volunteer-driven website, which aims to provide disease-specific information for as many rare diseases as possible. They also work to connect patient support groups across the country, develop a comprehensive online rare diseases and disorders registry, and develop a rare diseases and disorders biospecimen repository. Ultimately, they aim to make available these resources for rare diseases and disorders patients, health care professionals, epidemiologists, basic and clinical researchers and policy makers.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.