Foundation for Research on Rare Diseases and Disorders

The Foundation for Research on Rare Diseases and Disorders (Rare Disease India) is a nonprofit, volunteer-driven website, which aims to provide disease-specific information for as many rare diseases as possible. They also work to connect patient support groups across the country, develop a comprehensive online rare diseases and disorders registry, and develop a rare diseases and disorders biospecimen repository. Ultimately, they aim to make available these resources for rare diseases and disorders patients, health care professionals, epidemiologists, basic and clinical researchers and policy makers.