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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Histiocytosis Association, Inc.



Address

332 North Broadway
Pitman, NJ 08071

Phone

8565896606

Fax

8565896614

800 Number

8005482758

Email Address

info@histio.org

Description

The Histiocytosis Association, Inc. is a national, non-profit organization committed to the promotion of scientific research into the histiocytoses and the development of improved control and management of these diseases. Their ultimate goal is to promote medical research leading to the prevention and cure of histiocytosis. Established in 1986, the association seeks to provide solutions to problems that are specific to people who have histiocytosis and offers support to affected individuals and their families. They promote public education and produces educational materials. These include brochures, a networking directory, and "white papers" that are used in the evaluation of children with Langerhans cell histiocytosis (LCH) and other histiocytoses. Diseases that are represented by the association include histiocytosis X, Langerhans cell histiocytosis, Letterer-Siwe disease, Hand-Schuller-Christian syndrome, eosinophilic granuloma, pulmonary granuloma, Hashimoto-Pritzker syndrome, Langerhans cell granulomatosis, familial hemophagocytic lymphohistiocytosis, virus-associated hemophagocytic lymphohistiocytosis, xanthogranuloma, and diabetes insipidus with Langerhans cell histiocytosis.

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