To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Histiocytosis Association, Inc.


332 North Broadway
Pitman, NJ 08071





800 Number


Email Address

[email protected]


The Histiocytosis Association, Inc. is a national, non-profit organization committed to the promotion of scientific research into the histiocytoses and the development of improved control and management of these diseases. Their ultimate goal is to promote medical research leading to the prevention and cure of histiocytosis. Established in 1986, the association seeks to provide solutions to problems that are specific to people who have histiocytosis and offers support to affected individuals and their families. They promote public education and produces educational materials. These include brochures, a networking directory, and "white papers" that are used in the evaluation of children with Langerhans cell histiocytosis (LCH) and other histiocytoses. Diseases that are represented by the association include histiocytosis X, Langerhans cell histiocytosis, Letterer-Siwe disease, Hand-Schuller-Christian syndrome, eosinophilic granuloma, pulmonary granuloma, Hashimoto-Pritzker syndrome, Langerhans cell granulomatosis, familial hemophagocytic lymphohistiocytosis, virus-associated hemophagocytic lymphohistiocytosis, xanthogranuloma, and diabetes insipidus with Langerhans cell histiocytosis.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.