To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

National Down Syndrome Congress


30 Mansell Ct
Suite 108
Roswell, GA 30076 USA





800 Number


Email Address

[email protected]


The National Down Syndrome Congress (NDSC), a non-profit organization established in 1971, is committed to building a sense of community among all those concerned with Down syndrome. The congress provides leadership through of public policy and encourages ethically responsible research in all aspects of Down syndrome. It seeks to educate professionals, parents, and the community about Down syndrome, and fosters self-advocacy, rights, and full participation in all aspects of community life. The NDSC is also dedicated to developing position statements on major issues; providing a network that links state and local groups and affiliates; and enhancing relationships within the organizations’ communities and the broader disability community. The National Down Syndrome Congress provides a telephone hotline offering information on any subject related to Down syndrome. It conducts an annual convention, provides appropriate referrals, and coordinators a local parent group network and maintains directory of such groups to promote parent-to-parent and parent-to-professional networking.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.