National Down Syndrome Congress

The National Down Syndrome Congress (NDSC), a non-profit organization established in 1971, is committed to building a sense of community among all those concerned with Down syndrome. The congress provides leadership through of public policy and encourages ethically responsible research in all aspects of Down syndrome. It seeks to educate professionals, parents, and the community about Down syndrome, and fosters self-advocacy, rights, and full participation in all aspects of community life. The NDSC is also dedicated to developing position statements on major issues; providing a network that links state and local groups and affiliates; and enhancing relationships within the organizations� communities and the broader disability community. The National Down Syndrome Congress provides a telephone hotline offering information on any subject related to Down syndrome. It conducts an annual convention, provides appropriate referrals, and coordinators a local parent group network and maintains directory of such groups to promote parent-to-parent and parent-to-professional networking.