National Foundation for Ectodermal Dysplasias (NFED)
About National Foundation for Ectodermal Dysplasias (NFED)
The National Foundation for Ectodermal Dysplasias (NFED), which was established in 1981, is a non-profit service organization committed to being the authoritative resource for information on the ectodermal dysplasia (ED) syndromes; providing services that meet the physical, emotional, informational, and social needs of affected individuals and their families; and supporting research on the ED syndromes. The ED syndromes are a group of rare inherited disorders that typically affect the hair, teeth, nails, and/or skin. The foundation provides informational materials and support for families affected by ED syndromes in the United States and around the world. It also provides medical and dental professionals with useful information on early diagnosis and treatment options. The NFED maintains a database of healthcare professionals who have experience in treating people with ED.
Related Rare Diseases:
- Split Hand/Split Foot Malformation
- Hallermann-Streiff Syndrome
- Pachyonychia Congenita
- Setleis Syndrome
- Johanson-Blizzard Syndrome
- Papillon Lefèvre Syndrome
- Gorlin-Chaudhry-Moss Syndrome
- Hypomelanosis of Ito
- Ectrodactyly Ectodermal Dysplasia Cleft Lip/Palate
- Focal Dermal Hypoplasia
- Oculo-Dento-Digital Dysplasia
- Ellis-Van Creveld Syndrome
- Dyskeratosis Congenita
- Keratitis Ichthyosis Deafness Syndrome
- AEC Syndrome
- Hypohidrotic Ectodermal Dysplasia
- Trichorhinophalangeal Syndrome Type I
- Rothmund-Thomson Syndrome
- Tooth and Nail Syndrome
- Oral-Facial-Digital Syndrome
- Incontinentia Pigmenti
- Tricho Dento Osseous Syndrome
- Coffin-Siris Syndrome
- Ectodermal Dysplasias
- Síndrome de Rothmund-Thomson
- Síndrome de Coffin Siris
- Síndrome orofaciodigital
- Malformación de mano dividida/pie dividido
- Síndrome de anquilobléfaron-displasia ectodérmica-fisura labiopalatina
