Remember The Girls
2024 Member
About Remember The Girls
Remember The Girls aims to break the stigma facing females impacted by X-linked conditions by providing them with tools to seek support, engage with research, and access family planning options, as well as by advocating for increased attention of medical professionals to the physical, emotional, and reproductive needs of this community.
Related Rare Diseases:
- Aarskog Syndrome
- X-Linked Adrenoleukodystrophy
- MCT8-Specific Thyroid Hormone Cell Transporter Deficiency
- Agammaglobulinemia
- Alpha Thalassemia X-linked Intellectual Disability Syndrome
- WAS Related Disorders
- MECP2 Duplication Syndrome
- Alport Syndrome
- Partial Androgen Insensitivity Syndrome
- Barth Syndrome
- Muscular Dystrophy, Becker
- Choroideremia
- Chronic Granulomatous Disease
- Coffin Lowry Syndrome
- X-linked Retinoschisis
- Creatine Transporter Deficiency
- Dent Disease
- Dyskeratosis Congenita
- Duchenne Muscular Dystrophy
- Danon Disease
- Emery Dreifuss Muscular Dystrophy
- Fabry Disease
- Fragile X Syndrome
- Glucose-6-Phosphate Dehydrogenase Deficiency
- Acquired Hemophilia
- Glycogen Storage Disease Type IX
- Mucopolysaccharidosis Type II
- Hyper IgM Syndromes
- Familial Hypophosphatemia
- Spinal Muscular Atrophy
- Ichthyosis, X Linked
- Kabuki Syndrome
- Kennedy Disease
- Lesch Nyhan Syndrome
- Lowe syndrome
- X linked Lymphoproliferative Syndrome
- L1 Syndrome
- Menkes Disease
- Nephrogenic Diabetes Insipidus
- X-Linked Myotubular Myopathy
- Norrie Disease
- Ocular Albinism
- X-linked Opitz G/BBB Syndrome
- Ornithine Transcarbamylase Deficiency
- Otopalatodigital Syndrome Type I and II
- Pelizaeus-Merzbacher Disease
- X-Linked Protoporphyria
- Severe Combined Immunodeficiency
- Retinitis Pigmentosa
- Simpson-Golabi-Behmel Syndrome
- Spondyloepiphyseal Dysplasia Tarda
- Snyder-Robinson Syndrome
