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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Rubinstein-Taybi Parent Group


Address

158 S Hassett Cir
Mesa, AZ 85208 USA

Phone

480-432-3154

800 Number

8884472989

Description

The Rubinstein-Taybi Parent Group (RTPG) is a voluntary, non-profit, self-help organization that is dedicated to providing information, assistance, and support to parents, healthcare professionals, and others who care for children with Rubinstein-Taybi syndrome (RTS). Established in 1984, the Rubinstein-Taybi Parent Group provides a list of families affected by this disorder for the purpose of mutual support and information exchange. In addition, the group works with individuals, families, and various organizations around the world to help them start RTS support groups; and promotes and supports research on RTS. The organization provides a variety of educational and support materials, including a directory, a periodic newsletter, brochures, and pamphlets. The group also informs members about research being conducted on Rubinstein-Taybi syndrome and timely journal articles published in the peer-evaluated medical literature.

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