The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
158 S Hassett Cir
Mesa, AZ 85208 USA
The Rubinstein-Taybi Parent Group (RTPG) is a voluntary, non-profit, self-help organization that is dedicated to providing information, assistance, and support to parents, healthcare professionals, and others who care for children with Rubinstein-Taybi syndrome (RTS). Established in 1984, the Rubinstein-Taybi Parent Group provides a list of families affected by this disorder for the purpose of mutual support and information exchange. In addition, the group works with individuals, families, and various organizations around the world to help them start RTS support groups; and promotes and supports research on RTS. The organization provides a variety of educational and support materials, including a directory, a periodic newsletter, brochures, and pamphlets. The group also informs members about research being conducted on Rubinstein-Taybi syndrome and timely journal articles published in the peer-evaluated medical literature.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.