Scroll
To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

*Important

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Sudden Arrhythmia Death Syndromes Foundation


Address

4527 S 2300 E
Suite 104
Salt Lake City, UT 84117-4448 USA

Phone

801-272-3023

Fax

8015310945

800 Number

8007867723

Email Address

laura@sads.org

Description

The SADS Foundation - Sudden Arrhythmia Death Syndromes Foundation (SAD) is a national, non-profit organization that was established in 1991. Its mission is to save the lives of children and young adults who are genetically predisposed to sudden death due to heart rhythm abnormalities. The foundation is dedicated to increasing the general publics knowledge of the warning signs of heart rhythm abnormalities that can cause sudden death in the young. SADS provides information, resources, and support to assist patients and families to make informed medical decisions and to live with the challenges of these conditions. SADS serves as a physician referral resource center and facilitates several family support groups and a person-to-person networking program. The foundation also seeks to provides advice to physicians who care for people with long qt syndrome. In addition, the foundation is interested in the identification of individuals and families at risk for these diseases and in assisting families of those affected. SADS facilitates several family support groups and a person-to-person networking program.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.