The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
5003 Fairview Avenue
Downers Grove, IL 60515
The US TOO International, Inc., Prostate Cancer Survivor Support Groups is an international voluntary non-profit self-help organization, is dedicated to helping survivors of prostate cancer and BPH and their families lead healthy and productive lives, physically, mentally, and spiritually, by offering fellowship, shared counseling, and discussions pertaining to current medical options and a positive mental outlook. Prostate cancer is characterized by malignant cell development arising in the prostate gland. Symptoms may include increased frequency of urination; poor flow of urine, and difficulties beginning urination due to enlargement of the prostate. Benign Prostatic Hypertrophy (BPH), meaning enlargement of the prostate gland, refers to a benign, no inflammatory condition common in men over the age of 50 years. BPH is, however, a progressive condition that may cause increased frequency of urination, pain during urination, and urinary tract infections. US TOO were established in 1990 by five men, each of who had been diagnosed and treated for prostrate cancer and were interested in discussing their common situations and concerns with others. US TOO consists of approximately 550 support groups throughout the United States and other countries including Canada that each function as independent chapters and, together, form a network under the aegis of the parent group, US TOO International, Inc. Each chapter holds regular meetings for prostate cancer survivors and their families. At such meetings, members of the medical profession speak on some phase of diagnosis, stages, treatment options, or other related topics. Participants have the opportunity to discuss individual experiences that may be of interest to the group and receive various sources of information on prostate cancer and BPH. These shared experiences may be beneficial in understanding the disease, communicating with physicians, and making informed decisions. US TOO provides a variety of educational materials including brochures, pamphlets, monthly "Hot Sheets" containing information on clinical trials and current issues, and a regular newsletter entitled "US TOO Prostate Cancer Communicator." US TOO International also has a web site on the Internet at
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.