NORD supports the Affordable Care Act (ACA) and its requirements that health insurers offer comprehensive plans with strong patient protections and opposes efforts to expand access to short-term, limited-duration health plans
The ACA established a set of critical protections that benefit individuals living with rare diseases, including prohibiting insurers from denying an individual coverage because of a pre-existing condition, charging an individual more because of their health status or excluding certain benefits in order to discourage those with complex health conditions from enrolling in their plans. The ACA also established health care marketplaces, or exchanges, to help facilitate access to affordable health insurance for all Americans and establish a minimum standard of quality for all plans.
Unfortunately, in the last few years, multiple states have weakened their essential health benefits and network adequacy requirements as well as allowed for the expanded use of short-term, limited-duration health plans.1
Short-Term, Limited-Duration Health Plans
Rare disease patients need affordable, comprehensive health insurance benefits to treat their conditions and keep them healthy. Short-term, limited-duration health plans are not required to meet the quality standards outlined in the ACA and, in many cases, are able to discriminate against patients with pre-existing conditions or not provide coverage for essential health care needs. Additionally, many short-term, limited-duration plans have been found to use deceptive marketing practices, causing some individuals to enroll in these plans believing they will receive the same benefits as a comprehensive plan.2 It is only after an unexpected health issue, such as a rare disease diagnosis, that those individuals discover they do not have adequate health care coverage.
Additionally, the presence of short-term, limited-duration health plans in the marketplace can increase costs for rare disease patients. In order for health care costs for people with complex health conditions to remain affordable and sustainable, there must be significantly more individuals without complex health conditions participating in the same health care system. Since healthier individuals are more likely to choose plans that offer cheaper but less comprehensive coverage, the proliferation of short-term, limited-duration health plans results in people with fewer routine health care needs segmenting themselves into a separate risk pool. This leaves those with more complex health conditions bearing the brunt of higher health insurance costs.
Grading Methodology
NORDโs State Report Card includes information on what actions, if any, states have taken to mitigate the expansion of short-term, limited-duration health plans. States were graded separately on the following three categories, and an overall grade for short-term, limited duration health plans was determined by taking the average of these three separate grades:
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