Apr. 22, 2016
Posted by Heidi Ross
We are making progress throughout the country for the 1 in 10 Americans with rare diseases.
Here is a list of legislative initiatives that NORD and our network of advocates are actively participating in to better the lives of people and families in the rare disease community.
Don’t see your state on the list? Contact NORD to get the issues that you are facing added to this list. The RareAction Network℠ increases the awareness of those issues to key decision-makers and elected officials in the states or regions that can take action to make essential change.
If you’re interested in getting involved in your state, contact Tim Boyd at [email protected]
Follow the conversation on Twitter using #RareAction