Resource Library

Membership

Operating Budget Template

Research & Drug Development

Natural History Studies and Patient Registries

Membership

Medical Advisory Board Tip Sheet

Membership

Medical Advisory Board Policies and Procedures Template

Membership

Medical Advisory Board Member Agreement Template

Rare Disease Day

Letterhead

Membership

Published August 16, 2019

Increase Donations with Financial Transparency

Membership

Herramientas de RareLaunch (Taller de Diciembre 2020)

Membership

Guidelines for Medically-Vetted Information

Membership

Governance Recommendations for Member Organizations

Membership

Published October 26, 2020

Get Inspired to Take the Leap to Form a 501(c)(3) or Establish a Disease Registry to Advance Your Community

Membership

Published November 6, 2019

Fundraising: Activate Your Board

Membership

Published March 21, 2018

Fundraising

Membership

Creating Your Medical Advisory Board

Membership

Confidentiality Policy Template