Resource Library

Membership

Creating Your Medical Advisory Board

Membership

Confidentiality Policy Template

Membership

Bylaws General Nonprofit Structure Template

Membership

Building Your Case: Fundraising for Your Organization

Membership

Building Your Board Guide

Membership

Board Management

Membership

Board Electoral Process and Term Limits Language Template

COVID-19

Published April 16, 2020

Activating Your Medical Advisors for COVID-19 Response

Research & Drug Development

Published October 4, 2022

Voice of the Patient Report: Post-Transplant Lymphoproliferative Disorder

Legislative Advocacy, Research & Drug Development

Published June 1, 2016

Impact of the Orphan Drug Tax Credit

Regulatory

Published December 1, 2014

FDA’s Flexibility in Regulating Therapies

Understanding Rare Disease

Published June 1, 2021

Rare Cancer Facts

Get Involved

Published May 1, 2020

How to Start a Student Club

Get Involved

RareLaunch Resouce Center

Understanding Rare Disease

Continuing Medical Education (CME)