Resource Library

Membership

Published August 16, 2019

Increase Donations with Financial Transparency

Membership

Herramientas de RareLaunch (Taller de Diciembre 2020)

Membership

Guidelines for Medically-Vetted Information

Membership

Governance Recommendations for Member Organizations

Membership

Published October 26, 2020

Get Inspired to Take the Leap to Form a 501(c)(3) or Establish a Disease Registry to Advance Your Community

Membership

Published November 6, 2019

Fundraising: Activate Your Board

Membership

Published March 21, 2018

Fundraising

Membership

Creating Your Medical Advisory Board

Membership

Confidentiality Policy Template

Membership

Bylaws General Nonprofit Structure Template

Membership

Building Your Case: Fundraising for Your Organization

Membership

Building Your Board Guide

Membership

Board Management

Membership

Board Electoral Process and Term Limits Language Template

COVID-19

Published April 16, 2020

Activating Your Medical Advisors for COVID-19 Response