Resource Library

Legislative Advocacy, Research & Drug Development

Published June 1, 2016

Impact of the Orphan Drug Tax Credit

Regulatory

Published December 1, 2014

FDA’s Flexibility in Regulating Therapies

Understanding Rare Disease

Published June 1, 2021

Rare Cancer Facts

Get Involved

Published May 1, 2020

How to Start a Student Club

Get Involved

RareLaunch Resouce Center

Understanding Rare Disease

Continuing Medical Education (CME)

Research & Drug Development

RDCA-DAP Resource Center

Legislative Advocacy, Research & Drug Development

Published June 1, 2021

FDA’s Accelerated Approval Pathway: A Rare Disease Perspective

Research & Drug Development

Published March 1, 2021

Orphan Drugs in the U.S.: An Examination of Patents and Orphan Drug Exclusivity

Legislative Advocacy, Research & Drug Development

Published December 3, 2020

Orphan Drugs in the U.S.: Rare Disease Innovation and Cost Trends in 2019

Legislative Advocacy, Understanding Rare Disease

Published November 19, 2020

Barriers to Rare Disease Diagnosis, Care and Treatment in the U.S.: A 30-Year Comparative Analysis

Legislative Advocacy, Research & Drug Development

Published November 1, 2020

Barriers to Rare Disease Diagnosis, Care and Treatment in the U.S.: A 30-Year Comparative Analysis Fact Sheet

Diversity, Equity & Inclusion, Get Involved, Understanding Rare Disease

Published October 1, 2020

Ensuring Access to Telehealth for Rare Disease

COVID-19

Published November 1, 2020

COVID-19 Community Survey Report #2

COVID-19

Published May 5, 2020

COVID-19 Community Survey Report #1