Resource Library

Gene Therapy, Research & Drug Development, Understanding Rare Disease

Published October 14, 2020

Just for You: Genomic Testing and Personalized Care for Rare Cancers

Genetic Testing, Research & Drug Development, Understanding Rare Disease

Published September 4, 2020

Screen Baby Screen: Perspectives on Newborn Screening

COVID-19, Understanding Rare Disease

Published August 20, 2020

Impact of the COVID-19 Pandemic on the Rare Disease Community

COVID-19, Research & Drug Development, Understanding Rare Disease

Published June 27, 2020

Drug Supply in the Time of COVID-19

COVID-19, Research & Drug Development, Understanding Rare Disease

Published April 23, 2020

Called to Action: NORD’s Response to COVID-19

COVID-19, Understanding Rare Disease

Published April 2, 2022

A Rare Response: Addressing the COVID-19 Pandemic

Get Involved, Legislative Advocacy, Understanding Rare Disease

Published February 26, 2020

Starting a Not-For-Profit Organization: You Can Do It, We Can Help

Get Involved, Legislative Advocacy, Regulatory, Understanding Rare Disease

Published February 11, 2020

Your Voice Matters: How to Engage with the FDA

Genetic Testing, Research & Drug Development, Understanding Rare Disease

Published August 31, 2018

Genetic Testing 101 for People with Rare Diseases

Gene Therapy, Research & Drug Development, Understanding Rare Disease

Published July 18, 2018

Gene Therapy: Your Questions Answered

Gene Therapy, Research & Drug Development, Understanding Rare Disease

Published January 10, 2020

Life After Gene Therapy

Gene Therapy, Research & Drug Development, Understanding Rare Disease

Published December 5, 2019

Understanding Gene Therapy Process and Aftercare

Gene Therapy, Regulatory, Research & Drug Development, Understanding Rare Disease

Published December 13, 2019

FDA’s Role in Gene Therapy

Gene Therapy, Research & Drug Development, Understanding Rare Disease

Published October 7, 2019

The Science Behind Gene Therapy

Gene Therapy, Research & Drug Development, Understanding Rare Disease

Published September 19, 2019

Resource Library

Just for You: Genomic Testing and Personalized Care for Rare Cancers

Screen Baby Screen: Perspectives on Newborn Screening

Impact of the COVID-19 Pandemic on the Rare Disease Community

Drug Supply in the Time of COVID-19

Called to Action: NORD’s Response to COVID-19

A Rare Response: Addressing the COVID-19 Pandemic

Starting a Not-For-Profit Organization: You Can Do It, We Can Help

Your Voice Matters: How to Engage with the FDA

Genetic Testing 101 for People with Rare Diseases

Gene Therapy: Your Questions Answered

Life After Gene Therapy

Understanding Gene Therapy Process and Aftercare

FDA’s Role in Gene Therapy

The Science Behind Gene Therapy

Gene Therapy Yesterday, Today and Tomorrow

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