Published October 7, 2019
Resource Library
Published September 19, 2019
Gene Therapy Yesterday, Today and Tomorrow
Published August 6, 2019
Self-Advocacy and Care Coordination
Published June 26, 2019
How Specialty Pharmacies Support the Rare Community
Published June 26, 2019
Generic Drugs and Biosimilars
Published January 18, 2019
How to Make Your Health Insurance Work For You
Published November 15, 2019
10 Thing You May Not Know About Rare Diseases
Published March 28, 2019
10 Tips for Newly Diagnosed Rare Disease Patients and Caregivers
Published November 8, 2019
Pediatric Movement Disorders: Guidance for Parents and Physicians
Published June 27, 2021
Working While Rare
Published December 13, 2021
Health Equity and Rare Disorders (Part 1)
Published March 2, 2022
Advancing Health Equity in Rare Healthcare (Part 2)
Published May 5, 2022
Walk in Our Shoes: The Experience of Rare Disease Patients (Part 3)
Published March 5, 2021
Advancing Health Equity: A Community Conversation for Rare Disease Day
Published August 3, 2022