Published April 2, 2022
Resource Library
Published February 26, 2020
Starting a Not-For-Profit Organization: You Can Do It, We Can Help
Published February 11, 2020
Your Voice Matters: How to Engage with the FDA
Published August 31, 2018
Genetic Testing 101 for People with Rare Diseases
Published July 18, 2018
Gene Therapy: Your Questions Answered
Published January 10, 2020
Life After Gene Therapy
Published December 5, 2019
Understanding Gene Therapy Process and Aftercare
Published December 13, 2019
FDA’s Role in Gene Therapy
Published October 7, 2019
The Science Behind Gene Therapy
Published September 19, 2019
Gene Therapy Yesterday, Today and Tomorrow
Published August 6, 2019
Self-Advocacy and Care Coordination
Published June 26, 2019
How Specialty Pharmacies Support the Rare Community
Published June 26, 2019
Generic Drugs and Biosimilars
Published January 18, 2019
How to Make Your Health Insurance Work For You
Published November 15, 2019