Policy Statement Rare Action Network Volunteer Ambassador written testimony in support of Louisiana Rare Disease Advisory Council (RDAC)
Policy Statement NORD letter of support for AB 2283 to create California’s Rare Disease Ombudsperson and Rare Disease Advisory Council
News NORD Welcomes Rachel Sher as Vice President of Regulatory and Government Affairs, Lesli Nordstrom as Director of Marketing and Communications
News Patient Advocacy Group Leaders Tell How Data Sharing Can Help with Understanding Rare Diseases in New Video
News NORD Appoints Genetics and Metabolic Specialist Marshall L. Summar M.D. as Chairman of the Board
News NORD and C-Path Release Video on Rare Disease Challenges in Each Step of the Drug Development Process
News NORD Awards COVID-19 Rapid Response Seed Grants to Rare Disease Patient Organizations Impacted by the Pandemic
