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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Find free webinars, fact sheets, infographics and other helpful materials. View resources >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • Exciting Rare Impact Awards Announcements

    “From star power to the heroes of the rare disease community, it is going to be a night to remember.”

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  • NORD Launches New Program Aimed at Providing Caregivers with Relief

    “NORD’s Rare Caregiver Respite Program is designed to give back to caregivers—the parent, spouse, family member, or significant other—of a child or adult living with a rare disorder, and provides financial assistance to enable the caregiver a well-deserved break.”

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  • The Platelet Disorder Support Association (PDSA): 2019 Abbey S. Meyers Leadership Award

    “Through its various programs, PDSA works to ease the burden for those living with this disease, support the development of better treatments, and one day find a cure.”

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  • The Honorable Michael McCaul: 2019 Rare Impact Award Honoree

    “Serving his eighth term in Texas’ 10th Congressional District, Congressman Michael McCaul has achieved significant advancements for the rare disease community.”

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