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NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >
The international advocacy day to bring widespread recognition of rare diseases as a global health challenge. Visit site >
NORD Issues Report on Ensuring Access to Telehealth for Rare Diseases
“88% of rare patients offered a telehealth appointment during COVID-19 accepted it, 92% of whom said it was a positive experience”
NORD mentioned, RareInsights fact sheet featured in Psychology Today article
“A new article on PsychologyToday.com, “People with Rare Diseases Need Better Social Support,” examines a new study that shows which types of support most benefit those with rare diseases.”
NORD and C-Path Release New Video, “RDCA-DAP: Shortening the Timeline for Developing New Treatments for Rare Diseases”
“Final installment in video series highlights the ways RDCA-DAP can help to streamline and speed the journey to rare disease cures and treatments throughout the five stages of the drug development process.”
Quality of Life and Butterfly Wishes
“The Eva Juneja Foundation has provided a generous grant to enable NORD to provide eligible WWS diagnosed children an experience designed specifically for the child, to enhance his/her quality of life (a butterfly wish). ”
