Scroll
To Top

Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Find free webinars, fact sheets, infographics and other helpful materials. View resources >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >

News

  • NORD Launches New Patient Assistance Program Providing Support to Eligible NMOSD Patients

    “Neuromyelitis Optica Spectrum Disorder (NMOSD) Program provides financial assistance to eligible individuals diagnosed with this rare, chronic disorder.”

    Read more >

  • NORD Joins with Pyruvate Kinase Deficiency Community to Publish Historic “Voice of the Patient” Report

    “Resulting from a ground-breaking externally-led Patient-Focused Drug Development meeting, the newly published report gives voice to patients and families affected by pyruvate kinase deficiency, a devastating rare genetic disorder characterized by hemolytic anemia.”

    Read more >

  • NORD Reaches 300 Members!

    “We encourage all patient advocacy organizations to consider joining NORD!”

    Read more >

  • Head of the Herd: Leah Schust Myers, FamilieSCN2A Foundation

    “Introducing a new monthly feature highlighting leaders of NORD Member Organizations”

    Read more >