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Tools and Resources

Search NORD’s Database for reports on more than 1,300 diseases. Search database >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can  fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • National Brain Tumor Society

    “Finding new and more effective treatments that can extend survival for brain tumor patients is challenging, but we are rising to it.”

    Read more >

  • Giving Spotlight:  Honoring Mom-Mom’s Legacy with Research and Awareness

    “The research is really important because it’s rare. NORD is a great place to donate, says Julie”

    Read more >

  • National Spotlight on FDA and Duchenne Muscular Dystrophy: What This Means for Everyone with a Rare Disease

    “Next week, an FDA panel will hold the first of two meetings to review two drugs designed to help DMD patients”

    Read more >

  • NORD Supports Nomination of Dr. Califf for FDA Commissioner

    “Dr. Califf’s Senate confirmation hearing is scheduled to take place today”

    Read more >