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NORD Announces Keynote Speakers for 2017 Rare Diseases and Orphan Products Breakthrough Summit
“This year’s meeting will feature as keynote speakers parent advocate, award-winning journalist, and founder/CEO of The Mighty, Mike Porath; and newly-named Commissioner of the Food and Drug Administration, Dr. Scott Gottlieb.”
NORD Issues Statement Regarding the Release of Revised Draft of the Better Care Reconciliation Act
“ NORD will maintain its opposition to this legislation. ”
Protecting Your Healthcare Coverage
“Update (June 27) NORD Issues Statement in Response to Delay on Senate BCRA Vote”
The National Health Council and NORD Commend House Passage of FDA User Fee Reauthorization; Urge Senate to Follow Suit
“We commend the House of Representatives for passing the FDA Reauthorization Act (FDARA) with overwhelming bipartisan approval.”
