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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Find free webinars, fact sheets, infographics and other helpful materials. View resources >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • #NORDinthenews: Washington Post profiles NORD’s Rare Disease Database and

    “...there’s hope for people with rare conditions, and a quick browse of the National Organization for Rare Disorders’ Rare Disease Database proves it.”

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  • Students for Rare Featured Student: Viridiana Murillo

    “I strongly believe that my professional and academic experience are in line with NORD’s mission and commitment to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.”

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  • #NORDinthenews: NORD Summit content featured in two new articles

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  • NORD’s Work with FDA Gives Patients a Chance to Be Heard in Drug Development

    “FDA is working with the National Organization for Rare Disorders (NORD) through a special partnership to bring voices like my sister’s (and mine!) to their scientists to help understand what matters to patients for new drugs being reviewed by the FDA. ”

    Read more >