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Updated Study Analyzes Use and Cost of Orphan Drugs
“Median annual cost for top 10 rare disease therapies is less than $10,000 per year.”
Patient Advocates Warn Against New Insurance & PBM Policy That Increases Patient Out-of-Pocket Drug Costs
“As Open Enrollment Begins, Beneficiaries who Rely on Copay Coupons Must Consider this New Policy When Selecting a Health Plan”
NORD IAMRARE HI Global Registry Launched
“Patient-Powered Research for a Brighter Future”
NORD Seeks Proposals for CME Partnership
“The goals of this program will be to address universal issues related to rare diseases, such as delayed diagnosis, as well as topics related to specific rare diseases or groups of diseases.”
