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Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

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  • NORD Breakthrough Summit 2022: Highly Anticipated Rare Disease Conference Announces Keynote Speakers, Session Topics

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  • Solidify Your Legacy for Make a Will Month

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  • NORD Statement on Passage of the Inflation Reduction Act

    “The Inflation Reduction Act is a significant step forward in helping ensure that individuals and families with rare diseases have access to the comprehensive health care they need to survive and thrive”

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  • All Things Kabuki and NORD® Launch Natural History Study of Kabuki Syndrome

    “All Things Kabuki and NORD have launched a study with global reach to research Kabuki syndrome”

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