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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Find free webinars, fact sheets, infographics and other helpful materials. View resources >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • Featured Student: Scarlett Eagle

    “"My interest in rare diseases stems from wanting to prevent other patients from having some of the negative experiences that I had while searching for a diagnosis."”

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  • NORD Welcomes Rachel Sher as Vice President of Regulatory and Government Affairs, Lesli Nordstrom as Director of Marketing and Communications

    “NORD has announced two additions to its management team effective immediately.”

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  • NORD Issues New Rare Disease DayⓇ Rallying Cry: Show Your Stripes™!

    “Get ready to #ShowYourStripes for Rare Disease Day, the biggest day of the year for the rare disease community. ”

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  • NORD IAMRARE KAT6A Patient Registry Launched

    “ Research study is open to participants worldwide to advance understanding and treatments for rare disease causing KAT6A Syndrome”

    Read more >