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NORD Included in Parade.com Article on Rare Autoimmune Diseases
Head of the Herd: Seth Rotberg, Co-founder, Our Odyssey
“Meeting other young adults in the Huntington’s disease space was huge for me because I didn’t have to explain myself, they just got it. I wanted to bring that sense of belonging to other young adults living with rare or chronic conditions.”
NORD Awards COVID-19 Rapid Response Seed Grants to Rare Disease Patient Organizations Impacted by the Pandemic
“The awards will assist patient advocacy groups to access capacity-building tools and training needed in the new virtual environment made necessary by COVID-19. ”
Head of the Herd: Taylor Kane, Founder and President, Remember the Girls
