Search NORD’s Database for reports on more than 1,200 diseases. Search database >
Resources to help you start or grow your patient organization. View resources >
Visit our new platform where rare disease patients can fundraise, communicate and advocate. Start now >
NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >
NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >
The international advocacy day to bring widespread recognition of rare diseases as a global health challenge. Visit site >
Advocacy Alert: Tell Congress to Act Now and Pass FDA User Fee Agreements
“Patient advocacy groups: Add your organization's name to our sign-on letter”
NORD Rare Action Network℠ Releases Spring 2017 State Policy Legislative Tracker
“See what legislation we are tracking (and join us!) to help improve the lives of people and families with rare diseases”
NORD Names New Director of Membership
“Debbie Drell joins NORD with more than 18 years of nonprofit experience in public health education, awareness and advocacy”
International Pemphigus & Pemphigoid Foundation Launches Largest-Ever Study of Pemphigus and Pemphigoid
“Sponsored by NORD and the FDA, this new study will advance P/P research with help from YOU, the patient”
