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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • Early Diagnosis: Perspectives from NORD Student Chapter Leader, Harjot Randhawa

    “It is important for the future generation of medical professionals to work together to raise the awareness of rare disorders. ”

    Read more >

  • NORD Launches 7,000 Mile Rare Movement

    “NORD Issues Challenge to Collectively Run/Bike/Walk 7,000 Miles by February 28”

    Read more >

  • Your Help is Needed to #SaveCHIP

    “Join Advocates Across the Country in a National Day of Action to #SaveCHIP”

    Read more >

  • Nominations for the Rare Impact Awards Close Friday, January 12

    “Help us put the spotlight on people who are going above and beyond for the rare disease community!”

    Read more >