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The international advocacy day to bring widespread recognition of rare diseases as a global health challenge. Visit site >
Jan’s Story of Hope
“Read more about Jan's rare disease journey.”
Highlights from #NORDSummit Session: Mental Health and Rare Cancers
Request for Applications: New Patient Registries
“NORD announces a request for applications for the implementation of up to four new patient registries on the IAMRARE platform”
Rare Disease Advocates and Supporters Share the Importance of Raising Awareness Ahead of Rare Disease Day 2023
“With 100 days till Rare Disease Day 2023, organizations and individuals across the country join the National Organization for Rare Disorders (NORD) to help make a difference for rare disease patients and families”