Washington, DC, August 29, 2019–The National Organization for Rare DisordersⓇ (NORD) has announced a day devoted to raising awareness about rare cancers. Spearheaded by the NORD Rare Cancer Coalition, which is comprised of 24 rare cancer-specific Member Organizations, Rare Cancer Day will be observed on October 1 to highlight the challenges people living with rare Read more >
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NORD’s Hurricane Emergency Relief Fund provides limited financial assistance to those with a rare disease who are victims of natural disasters. Emergency relief funds may be requested once per household/per lifetime for up to $500. Expenses that may be covered under this award: Unexpected utility costs, such as those caused by severe weather Physician prescribed Read more >
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Resources to help you start or grow your patient organization. View resources >
Visit our new platform where rare disease patients can fundraise, communicate and advocate. Start now >
NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >
The international advocacy day to bring widespread recognition of rare diseases as a global health challenge. Visit site >
Voices of Rare Cancer: Graeleigh’s Story
“Young Graeleigh's mom shares their story of symptoms, diagnosis, treatment and hope.”
Innovative Data and Analytics Platform to Accelerate Drug Development for Rare Diseases
“Launched by C-Path and NORD through an FDA grant, the goal of the new platform is to accelerate the development of cures by addressing the need to better characterize rare diseases.”
NORD Expands Rare Disease Video Library
“Seven new videos have been added to the NORD Rare Disease Video Library, a unique educational resource launched earlier this summer.”
Voices of Rare Cancer: Paul’s Story
“To everyone dealing with this or caring for someone who does, I love you and hope you know that you’re far from alone.”
