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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Find free webinars, fact sheets, infographics and other helpful materials. View resources >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • NORD Reaches 300 Members!

    “We encourage all patient advocacy organizations to consider joining NORD!”

    Read more >

  • Head of the Herd: Leah Schust Myers, FamilieSCN2A Foundation

    “Introducing a new monthly feature highlighting leaders of NORD Member Organizations”

    Read more >

  • NORD Issues a Rare Decree: Show Your Stripes™ for Rare Disease Day®!

    “NORD is imploring the world at large to show its stripes in support of the rare disease community leading up to and on Rare Disease Day, which will be observed this year on February 29, the rarest day of all.”

    Read more >