Search NORD’s Database for reports on more than 1,200 diseases. Search database >
Find free webinars, fact sheets, infographics and other helpful materials. View resources >
Resources to help you start or grow your patient organization. View resources >
Visit our new platform where rare disease patients can fundraise, communicate and advocate. Start now >
NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >
The international advocacy day to bring widespread recognition of rare diseases as a global health challenge. Visit site >
NORD Gives Back: Working, Aging or Living with a Rare Disease
NORD Gives Back: The Future of Rare
NORD’s Rare Cancer Coalition 2021 Year In Review
Rare Disease Day: Finn’s Story
“Read about the journey of Finn and his family's story navigating a SELENON/SEPN1-related myopathy diagnosis”
