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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Find free webinars, fact sheets, infographics and other helpful materials. View resources >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • Voices of Rare Cancer: Graeleigh’s Story

    “Young Graeleigh's mom shares their story of symptoms, diagnosis, treatment and hope.”

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  • Innovative Data and Analytics Platform to Accelerate Drug Development for Rare Diseases

    “Launched by C-Path and NORD through an FDA grant, the goal of the new platform is to accelerate the development of cures by addressing the need to better characterize rare diseases.”

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  • NORD Expands Rare Disease Video Library

    “Seven new videos have been added to the NORD Rare Disease Video Library, a unique educational resource launched earlier this summer.”

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  • Voices of Rare Cancer: Paul’s Story

    “To everyone dealing with this or caring for someone who does, I love you and hope you know that you’re far from alone.”

    Read more >