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NORD Issues Statement on California v. Texas Ruling
Ray Stevens’ Rare Disease Reflections from 22,000 Feet
“Ray Stevens, rare disease researcher and advocate, has concluded his Himalayas and Mt. Everest trek to rare awareness for the rare community.”
NORD Welcomes Edward Neilan, MD, PhD, as Chief Medical and Scientific Officer
“New position reflects NORD’s commitment to advancing research and improving medical outcomes for the millions of Americans living with rare diseases”
NORD Announces New Board Chair and New Member of its Board of Directors
“During a recent NORD Board of Directors meeting, Kay Holcombe was elected as Chair and Dennis Jackman joined as a new Board member”
