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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Find free webinars, fact sheets, infographics and other helpful materials. View resources >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >

News

  • NORD Statement on Passage of the Inflation Reduction Act

    “The Inflation Reduction Act is a significant step forward in helping ensure that individuals and families with rare diseases have access to the comprehensive health care they need to survive and thrive”

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  • All Things Kabuki and NORD® Launch Natural History Study of Kabuki Syndrome

    “All Things Kabuki and NORD have launched a study with global reach to research Kabuki syndrome”

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  • NORD to Host Historic FDA Meeting on Galactosemia, in Partnership with the Galactosemia Foundation

    “A historic, virtual meeting of the galactosemia community, FDA, and drug development leaders will be hosted on Thursday, September 1st ”

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  • Rebekah’s Rare Story: How Mrs. Massachusetts Petite Spreads Hope & Awareness

    “Read more about Rebekah's rare journey.”

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