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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Find free webinars, fact sheets, infographics and other helpful materials. View resources >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • NORD Expands Rare Disease Video Library

    “Seven new videos have been added to the NORD Rare Disease Video Library, a unique educational resource launched earlier this summer.”

    Read more >

  • Voices of Rare Cancer: Paul’s Story

    “To everyone dealing with this or caring for someone who does, I love you and hope you know that you’re far from alone.”

    Read more >

  • NORD releases statement on Administration’s recent changes to medical deferred action policy

    “NORD applauds the House Committee on Oversight and Reform's Subcommittee on Civil Rights and Civil Liberties for holding today's important hearing”

    Read more >

  • Students for Rare Featured Student: Jaime Tan

    “Everyone who goes through their medical education should be familiar with rare diseases and the impact they have on patients, families, health professionals, and researchers.  ”

    Read more >