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NORD and Partners Publish Abstract Based on Web-Based Hemophilia A Educational Initiative for Patients, Caregivers and HCPs
“To respond to the needs of health care providers, patients and caregivers, NORD partnered with the Hemophilia Federation of America, National Hemophilia Foundation, and PlatformQ Health to create web-based education modules on hemophilia A.”
Connecticut Magazine Features NORD in Article on CT Nonprofits
“NORD noted for championing the fight against rare diseases through education, advocacy, research, and service programs”
NORD Releases Report on the State of Rare Disease Diagnosis, Care and Treatment in America Over Three Decades
“As part of an ongoing mission to generate evidence and data to advance our collective understanding of the rare disease patient experience, NORD conducted two studies aimed at identifying trends in rare disease diagnosis, care and treatment in the United States.”
NORD Launches Project RDAC, Announces Inaugural Meeting on December 16
“Rare Disease Advisory Councils (RDACs) enable the rare community to have a say in how their state’s programs and policies can support patients and caregivers.”
