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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can  fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • House Votes to Expand Medical Foods Coverage for Military Families

    “Today’s vote is a big first step in the right direction”

    Read more >

  • House to Vote on New Version of 21st Century Cures Act Tomorrow

    “U.S. lawmakers have finally reached an agreement on the 21st Century Cures Act, a game-changer for patients with rare diseases”

    Read more >

  • November 15th Day of Action: 21st Century Cures

    “Tell Congress to Support 21st Century Cures”

    Read more >

  • NORD Ready to Address New Challenges Based on Election Results

    “A Message from Peter L. Saltonstall about the Election Results and the Path Forward for Rare Diseases”

    Read more >