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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • Robert Campbell, Jr., M.D.: 2018 Lifetime Achievement Award Honoree

    “NORD is honored to present Dr. Robert Campbell with the 2018 Lifetime Achievement Award.”

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  • Estelle Benson, Founder of GBS|CIDP Foundation International: Abbey S. Meyers Leadership Award Honoree

    “NORD is honored to have the GBS|CIDP Foundation International as a long-time member and to honor their founder, Estelle Benson, tonight with the 2018 Abbey S. Meyers Award. ”

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  • Richard Pazdur, M.D.: 2018 Public Health Leadership Award Honoree

    “NORD is honored to present Dr. Richard Pazdur with the 2018 Public Health Leadership Award”

    Read more >

  • Patrick Dunegan: 2018 Rare Impact Award Honoree

    “NORD is honored to present {honoree name} with a 2018 Rare Impact Award”

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