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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • TAKE ACTION: Join NORD & Over 100 Patient Organizations in Supporting the RARE Act

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  • Mackenzie’s Mission

    “It is my hope that by creating this foundation, increased awareness can lead to people getting diagnosed years and even decades before organ involvement becomes life-threatening, thus greatly improving the chances of successful treatment. ”

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  • NORD Shares News on 35th Anniversary Celebration Presenting the Rare Impact Awards

    “We are looking forward to celebrating NORD's anniversary and honoring those who are working towards a future in which every one with a rare disease has access to a treatment or a cure.”

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  • NORD Issues Statement Regarding Governor Bevin’s Veto of Kentucky Senate Bill 7

    “"The National Organization for Rare Disorders (NORD) is incredibly disappointed by Governor Bevin’s decision to veto this legislation"”

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