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Summit 2021 Virtual

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RDACs

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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Find free webinars, fact sheets, infographics and other helpful materials. View resources >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >

News

  • NIH, FDA and 15 private organizations join forces to increase effective gene therapies for rare diseases

    “NORD joins newly launched Bespoke Gene Therapy Consortium (BGTC), part of the NIH Accelerating Medicines Partnership (AMP) program”

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  • Record-Setting NORD Breakthrough Summit Welcomes Nearly 1,000 Members of the Rare Disease Community

    “Two days of insightful and engaging speakers, sessions, and networking at the most important event in rare disease saw record-breaking attendance ”

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  • From a Horse to a Zebra: Dana’s Rare Disease Story

    “Dana's story is a long journey of symptoms and challenges but ultimately hope and effort towards a more normal life with Ehlers-Danlos”

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  • Rare Disease Cures Accelerator-Data and Analytics Platform – Logo Development Request for Proposal

    “RFP for the creation of a logo and branding guidelines for the Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP)”

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