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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • Join us at the 2018 NORD Rare Summit

    “A message from NORD's President and CEO”

    Read more >

  • NORD Issues Statement on the Passing of Dr. Robert M. Campbell

    “All of us at NORD are thinking of Dr. Campbell’s family, friends, patients and colleagues during this time.”

    Read more >

  • NORD Invites Video Submissions on Advocacy Experience

    ““35 Years & Growing: Personal Stories from the New Era of Patient Advocacy” Campaign to Run Through September 19”

    Read more >

  • Giving Spotlight:  Honoring Mom-Mom’s Legacy with Research and Awareness

    “Help further research for pheo, a rare cancer, by donating to the NORD research fund. ”

    Read more >