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The international advocacy day to bring widespread recognition of rare diseases as a global health challenge. Visit site >
Still Rare After 50 Years: Andrea’s Rare Cancer Story
“Andrea's story is about family and closure and continuing to to learn and grow both personally and in the cancer field after many years”
NORD Welcomes Aliza Fink, D.Sc. as Director of Research Programs
Tatton Brown Rahman Syndrome Community and NORD® Launch Natural History Study of Tatton Brown Rahman Syndrome (TBRS)
“Research study is open to participants worldwide to advance understanding and treatments for TBRS”
A Message to Chondrosarcoma Patients: Shayna’s Rare Cancer Story
“Shayna's story is meant to give some direction to patients and families who have been newly diagnosed and the importance of advocating and casting a wide net for options”
