Your donation helps NORD provide resources and support to over 25 million Americans living with rare diseases and their families.
Search NORD’s Database for reports on more than 1,200 diseases. Search database >
Find free webinars, fact sheets, infographics and other helpful materials. View resources >
Resources to help you start or grow your patient organization. View resources >
Visit our new platform where rare disease patients can fundraise, communicate and advocate. Start now >
NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >
The international advocacy day to bring widespread recognition of rare diseases as a global health challenge. Visit site >
Dianna’s Story as a Rare Survivor
“Dianna's story is about resetting your life after a death sentence diagnosis and the journey to educating, advocating and sharing a rare cancer story”
NORD Gives Back: Caregivers and Families
“Give thanks and celebrate National Family Caregivers Month with the latest #NORDGivesBack blog”
NORD Gives Back: Advanced and Advancing Care
“The latest #NORDGivesBack content spotlights advancing care and the future of the rare journey”
NORD Gives Back: Benefits for the Newly Diagnosed
“Explore #NORDGivesBack content on support and benefits for newly diagnosed rare patients”