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Summit 2021 Virtual

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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Find free webinars, fact sheets, infographics and other helpful materials. View resources >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • Looking Back at an Unforgettable 2021 Living Rare, Living Stronger Forum

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  • NORD Named an Official Charity Partner of the 2021 TCS New York City Marathon

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  • Continuing the Conversation: FDA and CDC Leaders Discuss Vaccines and the Pandemic

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  • NORD Issues Statement on California v. Texas Ruling

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