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Tools and Resources

Search NORD’s Database for reports on more than 1,300 diseases. Search database >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can  fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • Happy Father’s Day from NORD

    “A special message to the rare dads and families”

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  • NORD Applauds Senate for Authorizing Medical Foods Coverage for the Military in National Defense Authorization Act (S.2943)

    “This is an important step to receive large payor coverage of medical foods, and we hope it will accelerate getting other payors to cover the services”

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  • NORD Appoints Genetics and Metabolic Specialist Marshall L. Summar M.D. as Chairman of the Board

    “Dr. Summar is chief of the division of Genetics and Metabolism, at Children’s National Health System, the largest clinical division internationally caring for rare diseases”

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  • NORD Speakers Bureau

    “Request a speaker for your classroom or event”

    Read more >