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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Find free webinars, fact sheets, infographics and other helpful materials. View resources >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >

News

  • Jenny’s ACPMP Story

    “I am elated to say that as of my most recent CT Scan, my biggest tumor has been reduced by about 50%!”

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  • NORD AND TRIO HEALTH PUBLISH NEW BOOK TO PROVIDE CRITICAL PATIENT INSIGHTS INTO THE BURDEN OF LIVING WITH AND TREATING RARE DISEASES

    “Real-world evidence and compelling case studies bring to life the challenges facing the estimated 30 million Americans fighting to live better with rare disorders.”

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  • Arthur’s CIDP Story

    “In this story, Arthur reflects on his diagnostic journey and the importance of continued rare disease research.”

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  • Exciting Rare Impact Awards Announcements

    “From star power to the heroes of the rare disease community, it is going to be a night to remember.”

    Read more >