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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • NORD statement in response to American Patients First, the Trump Administration Blueprint to Lower Drug Prices and Reduce Out-of-Pocket Costs

    “NORD supports the efforts by President Trump, Secretary Azar, and the new Administration to develop a program to lower drug prices and reduce out-of-pocket costs. ”

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  • Watch LIVE: NORD’s 35th Anniversary & Rare Impact Awards Celebration

    “Join us for the biggest night in rare diseases from home! Watch the event on Facebook Live! ”

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  • NORD 35th Anniversary Blog Series: The Early Years (1980s)

    “ Follow along in this special series as we highlight NORD's decades of service to those impacted by rare diseases”

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  • 35 Ways and Growing: NORD’s Service to the Rare Disease Community

    “For 35 years, NORD has been leading the fight to improve the lives of patients and families with rare diseases.”

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