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Tools and Resources

Search NORD’s Database for reports on more than 1,300 diseases. Search database >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • NORD Awards New Research Grants for Rare Disease Research

    “NORD has funded seven new research grants for rare disease research”

    Read more >

  • Rare Disease Summer Family Camp: A Place to Call Home

    “June 1-4 in Ashford, CT: Second-ever Rare Disease Summer Family Camp”

    Read more >

  • Join NORD and ABC News for a Rare Disease Day® Tweetchat on Feb. 28

    “A nationwide conversation about rare diseases”

    Read more >

  • Raise Your Hand for Rare Disease Research

    “To trigger a donation from Lundbeck to NORD’s general research fund, click on the RAISE YOUR HAND icon!”

    Read more >