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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Find free webinars, fact sheets, infographics and other helpful materials. View resources >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >

News

  • NORD’s Mary Dunkle Comments on Diagnosis Challenges and Urges Caution on Using Internet Sources in New Article

    “'Dr. Google' Helps Some Patients Diagnose a Rare Disease”

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  • Read the Inspiring Personal Story of a NORD Member Organization Leader

    “Nebraska’s Neena Nizar Seeks Cure for Jansen’s, One of World’s Rarest Diseases”

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  • FDA Acting Commissioner to Deliver NORD Rare Summit Keynote

    “We're delighted to announce that Acting FDA Commissioner, Norman E. "Ned" Sharpless will deliver the keynote address at this year's NORD Rare Summit.”

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  • FUNDED BY FDA, C-PATH and NORD TO LAUNCH RARE DISEASE DATA ANALYTICS PLATFORM

    “The collaborative project between the organizations will kick off at a launch meeting in September and will aim to reduce barriers for the development of new treatments and cures for rare diseases.”

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