Scroll
To Top

Rare Disease Day 2022 Policy Alert MedicAlert RDACs

More Info >

Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Find free webinars, fact sheets, infographics and other helpful materials. View resources >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >

News

  • NORD Gives Back: Working, Aging or Living with a Rare Disease

    Read more >

  • NORD Gives Back: The Future of Rare

    Read more >

  • NORD’s Rare Cancer Coalition 2021 Year In Review

    Read more >

  • Rare Disease Day: Finn’s Story

    “Read about the journey of Finn and his family's story navigating a SELENON/SEPN1-related myopathy diagnosis”

    Read more >