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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >

News

  • NORD Announces Three New Hires to Lead Research, Education and Business Development Programs

    “We are ecstatic to welcome these seasoned and passionate subject matter experts to the team”

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  • NORD Issues Statement on Senate Leadership’s Recent Update on “Graham-Cassidy” Proposal

    “We are committed to remaining engaged in the process of securing lasting quality and affordable healthcare coverage for individuals with rare diseases.”

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  • Protecting Your Healthcare Coverage

    “We are committed to remaining engaged in the process of securing lasting quality and affordable healthcare coverage for individuals with rare diseases. ”

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  • NORD Issues Statement Opposing the “Graham-Cassidy” ACA Replacement Plan

    “We urge both Republic and Democratic Senators to stand up for the rare disease community and reject the "Graham-Cassidy" proposal as written.”

    Read more >