To Top

Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Find free webinars, fact sheets, infographics and other helpful materials. View resources >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • Become a rare disease mythbuster during NORD’s Living Rare, Living Stronger Patient & Family Forum

    “Join us for a special weekend of busting rare disease myths! ”

    Read more >

  • The 2019 Rare Neurological Disease Special Report Is Now Available

    “This 5th annual issue is the largest to date and focuses on the progress in medical science, genetics, and neuromuscular diseases”

    Read more >

  • NORD Publishes Report on Primary Distal Renal Tubular Acidosis

    “Learn more about dRTA in NORD's new rare disease report.”

    Read more >

  • Living Rare, Living Stronger full agenda with speakers now available

    “You're going to want to be there! ”

    Read more >