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Find free webinars, fact sheets, infographics and other helpful materials. View resources >
Resources to help you start or grow your patient organization. View resources >
Visit our new platform where rare disease patients can fundraise, communicate and advocate. Start now >
NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >
The international advocacy day to bring widespread recognition of rare diseases as a global health challenge. Visit site >
From a Horse to a Zebra: Dana’s Rare Disease Story
“Dana's story is a long journey of symptoms and challenges but ultimately hope and effort towards a more normal life with Ehlers-Danlos”
Rare Disease Cures Accelerator-Data and Analytics Platform – Logo Development Request for Proposal
“RFP for the creation of a logo and branding guidelines for the Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP)”
Saida’s Story of Strength
“Saida's rare disease story highlights her two diseases but her unchecked positivity and attitude. Hers is a story to spread comfort and support.”
Loneliness, Connection and Mesothelioma: Tamron’s Rare Disease Story
“Tamron's story begins with rare cancer but demonstrates the importance of connection and finding community during a rare disease journey”
