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The international advocacy day to bring widespread recognition of rare diseases as a global health challenge. Visit site >
The NORD Policy Team Wants to Hear About Your COVID-19 Telehealth Experience
“Telehealth is generally described as a virtual communication used to deliver care outside of a typical or traditional health care facility.”
NORD Issues Statement on Recently Introduced “Promising Pathway Act”
“Contrary to the stated goal of giving patients with serious and life-threatening diseases a “chance at receiving meaningful treatments,” this legislation, by its own terms, would lower FDA’s approval standards, exposing patients to unsafe and ineffective medicines.”
FDA Oncology Center of Excellence Listening Session with NORD: A Patient Perspective
“NORD's Rare Cancer Coalition identified rare cancer patients and caregivers to share their experiences with the FDA around participating in clinical trials during the pandemic.”
The Motley Fool Chooses NORD as One of Three Nonprofits Worthy of Donations
“If you're interested in making a high-impact donation but you don't want to waste your capital on a potentially ineffective organization, look no further than these three nonprofits.”
