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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • Healthline and NORD Announce Recipients of 2018 Stronger Scholarships

    “The program’s goal is to create a stronger, healthier world by assisting and empowering college students who are making a positive impact on rare and/or chronic diseases.”

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  • Join us at the 2018 NORD Rare Summit

    “A message from NORD's President and CEO”

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  • NORD Issues Statement on the Passing of Dr. Robert M. Campbell

    “All of us at NORD are thinking of Dr. Campbell’s family, friends, patients and colleagues during this time.”

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  • NORD Invites Video Submissions on Advocacy Experience

    ““35 Years & Growing: Personal Stories from the New Era of Patient Advocacy” Campaign to Run Through September 19”

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