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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • New Research Funding Opportunities Available from NORD

    “All U.S. and international researchers are encouraged to apply by the initial application deadline of July 16, 2018”

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  • NORD Issues Statement Regarding House Passage of the Right to Try Act (S.204)

    “The bill that passed the House today is dangerous, and we will do everything we can to protect our patients from unsafe and ineffective therapies.”

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  • Save the Date for NORD’s 2018 Rare Summit

    “Mark the details in your calendars and keep an eye out for a registration announcement in early June.”

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  • NORD statement in response to American Patients First, the Trump Administration Blueprint to Lower Drug Prices and Reduce Out-of-Pocket Costs

    “NORD supports the efforts by President Trump, Secretary Azar, and the new Administration to develop a program to lower drug prices and reduce out-of-pocket costs. ”

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