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NORD Issues Statement on the Better Care Reconciliation Act of 2017
“We find that the BCRA fails to meet several of the NORD Principles, and we are therefore compelled to oppose the legislation as written.”
Protecting Your Healthcare Coverage
“Update (June 20) NORD Launches Days of Action to Protect Your Healthcare Legislation as Senate Debates healthcare reform legislation”
NORD Leads Rare Disease Community Days of Action Campaign to Protect Healthcare Coverage
“This multi-channel campaign will rally advocacy organizations and patient communities to take action by telling their Senators and Governors why Medicaid and pre-existing condition protections are vitally important to their constituents. ”
NORD Issues Statement on Confirmation of New FDA Commissioner, Dr. Scott Gottlieb
