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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can  fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • Member Spotlight: AMEN Support

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  • People Magazine Turns Spotlight on Rare Diseases with Personal Stories from Country Music Star Randy Rogers and Model Lauren Wasser

    “Rare diseases gain national exposure with two articles in People's Magazine”

    Read more >

  • Member Spotlight: UMDF

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  • Q & A with Russ Illes, Author of Duct Tape Won’t Fix This

    “Russ Illes, father of a chronically ill daughter, started a website for fathers to express their feelings as men. ”

    Read more >