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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Find free webinars, fact sheets, infographics and other helpful materials. View resources >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • Students for Rare Featured Student: Viridiana Murillo

    “I strongly believe that my professional and academic experience are in line with NORD’s mission and commitment to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.”

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  • #NORDinthenews: NORD Summit content featured in two new articles

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  • NORD’s Work with FDA Gives Patients a Chance to Be Heard in Drug Development

    “FDA is working with the National Organization for Rare Disorders (NORD) through a special partnership to bring voices like my sister’s (and mine!) to their scientists to help understand what matters to patients for new drugs being reviewed by the FDA. ”

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  • What Questions Would You Ask About Gene Editing?

    “NORD is creating a new educational video on this topic, and we want to be sure it addresses the questions that are most important to patients and caregivers across the rare disease community. ”

    Read more >