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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Find free webinars, fact sheets, infographics and other helpful materials. View resources >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >

News

  • Highlights from #NORDSummit Session: Mental Health and Rare Cancers

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  • Request for Applications: New Patient Registries

    “NORD announces a request for applications for the implementation of up to four new patient registries on the IAMRARE platform”

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  • Rare Disease Advocates and Supporters Share the Importance of Raising Awareness Ahead of Rare Disease Day 2023

    “With 100 days till Rare Disease Day 2023, organizations and individuals across the country join the National Organization for Rare Disorders (NORD) to help make a difference for rare disease patients and families”

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  • Maybe Obscure to You, but Life-Changing for Millions of Americans

    “126 Organizations Urge Congress to Include Critical FDA Programs and Reforms in Year-End Spending Bill”

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