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Visit our new platform where rare disease patients can fundraise, communicate and advocate. Start now >
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The international advocacy day to bring widespread recognition of rare diseases as a global health challenge. Visit site >
NORD Reaches 300 Members!
“We encourage all patient advocacy organizations to consider joining NORD!”
Head of the Herd: Leah Schust Myers, FamilieSCN2A Foundation
“Introducing a new monthly feature highlighting leaders of NORD Member Organizations”
NORD Issues a Rare Decree: Show Your Stripes™ for Rare Disease Day®!
“NORD is imploring the world at large to show its stripes in support of the rare disease community leading up to and on Rare Disease Day, which will be observed this year on February 29, the rarest day of all.”
