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Senate Passes Short-Term Agreement to Accelerate Treatments for 15 Million Sick Children with Rare Diseases
“Unanimous vote extends the Rare Pediatric Disease Priority Review Voucher Program with important policy changes through December”
NORD Converges on Capitol Hill for Rally for Medical Research Hill Day to Advocate for Increased Funding for the National Institutes of Health (NIH)
“More than 300 organizations join forces to ask Congress to provide robust, sustained, and predictable budget increases for the NIH”
The Hill publishes NORD op-ed: Congress must act now to help 15 million sick children
“We need your help - please join us in advocating for the reauthorization of the PRV program”
A Group No One Applies to Join
“Guest Blog: An interview with Erdheim-Chester Disease patient, Janet Bunge, in honor of Erdheim Chester Disease Awareness Week (#ECDAwareness), Sept. 12-17, 2016”
