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NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >
The international advocacy day to bring widespread recognition of rare diseases as a global health challenge. Visit site >
Jenny’s ACPMP Story
“I am elated to say that as of my most recent CT Scan, my biggest tumor has been reduced by about 50%!”
NORD AND TRIO HEALTH PUBLISH NEW BOOK TO PROVIDE CRITICAL PATIENT INSIGHTS INTO THE BURDEN OF LIVING WITH AND TREATING RARE DISEASES
“Real-world evidence and compelling case studies bring to life the challenges facing the estimated 30 million Americans fighting to live better with rare disorders.”
Arthur’s CIDP Story
“In this story, Arthur reflects on his diagnostic journey and the importance of continued rare disease research.”
Exciting Rare Impact Awards Announcements
“From star power to the heroes of the rare disease community, it is going to be a night to remember.”
