Search NORD’s Database for reports on more than 1,200 diseases. Search database >
Find free webinars, fact sheets, infographics and other helpful materials. View resources >
Resources to help you start or grow your patient organization. View resources >
Visit our new platform where rare disease patients can fundraise, communicate and advocate. Start now >
NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >
The international advocacy day to bring widespread recognition of rare diseases as a global health challenge. Visit site >
Catch Living Rare Forum Plenaries and The Rare Impact Awards on Facebook Live!
“Tune in for select content during NORD's Living Rare Forum & Rare Impact Awards! ”
Jenny’s ACPMP Story
“I am elated to say that as of my most recent CT Scan, my biggest tumor has been reduced by about 50%!”
NORD AND TRIO HEALTH PUBLISH NEW BOOK TO PROVIDE CRITICAL PATIENT INSIGHTS INTO THE BURDEN OF LIVING WITH AND TREATING RARE DISEASES
“Real-world evidence and compelling case studies bring to life the challenges facing the estimated 30 million Americans fighting to live better with rare disorders.”
Arthur’s CIDP Story
“In this story, Arthur reflects on his diagnostic journey and the importance of continued rare disease research.”
