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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Find free webinars, fact sheets, infographics and other helpful materials. View resources >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • Rare Disease Day is a Global Movement

    “Join us in making an impact as February 28 approaches!”

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  • India’s Story in Honor of Rare Disease Day

    “We are hopeful that with the right therapies, encouragement and constant reminders that she is unstoppable, that her future will be bright despite this disease.”

    Read more >

  • McCarthy Story in Honor of Rare Disease Day

    “Having a baby with such a debilitating disorder is challenging but having support from people who are also going through it has helped my family tremendously.”

    Read more >

  • Apellis Pharmaceuticals Recognizes Rare Disease Day

    “NORD thanks Apellis for their support of Rare Disease Day 2019.”

    Read more >