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NORD Launches New Patient Assistance Program Providing Support to Eligible NMOSD Patients
“Neuromyelitis Optica Spectrum Disorder (NMOSD) Program provides financial assistance to eligible individuals diagnosed with this rare, chronic disorder.”
NORD Joins with Pyruvate Kinase Deficiency Community to Publish Historic “Voice of the Patient” Report
“Resulting from a ground-breaking externally-led Patient-Focused Drug Development meeting, the newly published report gives voice to patients and families affected by pyruvate kinase deficiency, a devastating rare genetic disorder characterized by hemolytic anemia.”
NORD Reaches 300 Members!
“We encourage all patient advocacy organizations to consider joining NORD!”
Head of the Herd: Leah Schust Myers, FamilieSCN2A Foundation
“Introducing a new monthly feature highlighting leaders of NORD Member Organizations”
