The 2018 report has grown to cover several emerging issues. Download your copy today.
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Register now for the NORD Rare Summit to advance the dialogue on issues of unprecedented importance to the rare disease community.
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NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >
NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >
Save the Date for NORD’s 2018 Rare Summit
“Mark the details in your calendars and keep an eye out for a registration announcement in early June.”
NORD statement in response to American Patients First, the Trump Administration Blueprint to Lower Drug Prices and Reduce Out-of-Pocket Costs
“NORD supports the efforts by President Trump, Secretary Azar, and the new Administration to develop a program to lower drug prices and reduce out-of-pocket costs. ”
Watch LIVE: NORD’s 35th Anniversary & Rare Impact Awards Celebration
“Join us for the biggest night in rare diseases from home! Watch the event on Facebook Live! ”
NORD 35th Anniversary Blog Series: The Early Years (1980s)
“ Follow along in this special series as we highlight NORD's decades of service to those impacted by rare diseases”