To Top

Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • Fibrolamella Cancer Foundation Thanks NORD for Help with SSA Compassionate Allowance Listing

    “Fibrolamellar Cancer has been added to SSA Compassionate Allowances list along with five other rare diseases. Hear more about this news from John Hopper, President of the Fibrolamellar Cancer Foundation.”

    Read more >

  • Healthline and NORD Announce Recipients of 2018 Stronger Scholarships

    “The program’s goal is to create a stronger, healthier world by assisting and empowering college students who are making a positive impact on rare and/or chronic diseases.”

    Read more >

  • Join us at the 2018 NORD Rare Summit

    “A message from NORD's President and CEO”

    Read more >

  • NORD Issues Statement on the Passing of Dr. Robert M. Campbell

    “All of us at NORD are thinking of Dr. Campbell’s family, friends, patients and colleagues during this time.”

    Read more >