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NORD Welcomes Aliza Fink, D.Sc. as Director of Research Programs
Tatton Brown Rahman Syndrome Community and NORD® Launch Natural History Study of Tatton Brown Rahman Syndrome (TBRS)
“Research study is open to participants worldwide to advance understanding and treatments for TBRS”
A Message to Chondrosarcoma Patients: Shayna’s Rare Cancer Story
“Shayna's story is meant to give some direction to patients and families who have been newly diagnosed and the importance of advocating and casting a wide net for options”
Rare Disease Innovation and Data Sharing Accelerated by New RDCA-DAP Program
“C-Path, NORD and FDA host annual meeting, demonstration and launch of new rare disease data and analytics platform. ”
