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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can  fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • NORD Issues Statement on NIH Appointment of New Director for Office of Rare Diseases Research

    “Petra Kaufmann, M.D., M.Sc., has been named director of the ORDR, an office of great importance to the rare disease community”

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  • Hope for Kids with Heart Disease: September is Children’s Cardiomyopathy Awareness Month!

    “When one thinks of heart disease, adults usually come to mind. The reality is children can have heart disease too, often with more serious outcomes.”

    Read more >

  • NORD’S Free Student Membership: Sign up Today!

    “It’s easy to sign up. If you are a student who would like to learn about rare diseases, sign up today and connect with NORD’s Educational Initiatives team.”

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  • Miss Connecticut Talks to NORD about Rare Diseases, the Miss America Pageant, and Voting for America’s Choice

    “We were excited to speak with Colleen Ward, who will represent the State of Connecticut, where NORD’s headquarters are based”

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