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Summerly’s Rare Journey
“Read about Summerly and her family's rare disease journey.”
NORD Applauds Congressional Efforts to Restore Intent of the Orphan Drug Act
“NORD Applauds Legislative Efforts to Restore Intent of the Orphan Drug Act within H.R. 7667, the Food and Drug Amendments of 2022, and with Introduction the Retaining Access and Restoring Exclusivity (RARE) Act ”
NORD Hosts the Largest Gathering of a Rare, Post-Transplant Cancer in History
Maine Elevates Rare Disease Voices, Establishes State Advisory Council
“Maine becomes the 23rd state to create a council that will help address the needs of rare disease patients and their families ”
