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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can  fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • Rare Diseases & Orphan Products Breakthrough Summit Speakers

    “NORD Announces Keynote Speakers for 2016 Rare Diseases & Orphan Products Breakthrough Summit”

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  • President Obama Signs Advancing Hope Act

    “President Obama signed the Advancing Hope Act (S. 1878), extending the Rare Pediatric Disease Priority Review Voucher (PRV) program until December 31”

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  • A New Partnership that Helps Raise Awareness of Rare Diseases

    “NORD Now has A Growing Home Page on The Mighty and Will Appear on Many Stories on the Site”

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  • Running for Rare Named an Official Charity Partner

    “It was Announced Running for Rare was Named an Official Charity Partner of the 2017 Skechers Performance Los Angeles Marathon”

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