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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • 2017 Rare Impact Awards Recap

    “A recap on NORD's signature fundraiser to support a mission of providing education, advocacy, research and patient support for Americans battling rare diseases.”

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  • Rare Disease Advisory Council Bill Moves through Pennsylvania House

    “Pennsylvania HB 239 establishes a Rare Disease Advisory Council and ensures rare disease patients have a voice in government”

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  • NORD Statement on Confirmation of New FDA Commissioner

    ““We at the National Organization for Rare Disorders look forward to working with Dr. Scott Gottlieb."”

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  • NORD Launches Free CME Program to Educate Medical Professionals about Rare Diseases

    “NORD's first continuing medical education (CME) event will take place on June 17 in Washington, D.C.”

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