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End of Year 2021 Policy Alert Rare Disease Day 2022 RDACs

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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Find free webinars, fact sheets, infographics and other helpful materials. View resources >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >

News

  • NORD Gives Back: Caregivers and Families

    “Give thanks and celebrate National Family Caregivers Month with the latest #NORDGivesBack blog”

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  • NORD Gives Back: Advanced and Advancing Care

    “The latest #NORDGivesBack content spotlights advancing care and the future of the rare journey”

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  • NORD Gives Back: Benefits for the Newly Diagnosed

    “Explore #NORDGivesBack content on support and benefits for newly diagnosed rare patients”

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  • NORD’s Response to the House Passage of the Build Back Better Act

    “Build Back Better Act continues to include devastating changes to the Orphan Drug Tax Credit”

    Read more >