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NORD Breakthrough Summit 2022: Highly Anticipated Rare Disease Conference Announces Keynote Speakers, Session Topics
Solidify Your Legacy for Make a Will Month
“August is national “Make a Will Month,” a critical moment for planned giving and making a lasting impact”
NORD Statement on Passage of the Inflation Reduction Act
“The Inflation Reduction Act is a significant step forward in helping ensure that individuals and families with rare diseases have access to the comprehensive health care they need to survive and thrive”
All Things Kabuki and NORD® Launch Natural History Study of Kabuki Syndrome
“All Things Kabuki and NORD have launched a study with global reach to research Kabuki syndrome”