To Top

Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can  fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • Advocacy Alert: Illinois Rare Disease Commission Bill

    “Update: Illinois Patient Organizations and Advocates Send Letter to Governor Rauner”

    Read more >

  • NORD Issues Statement as Senate Postpones Vote on Cures Legislation

    “Summer recess begins tomorrow, postponing a vote until September at the very earliest”

    Read more >

  • July 13 Day of Action: Last Chance for Zika Funding

    “Congress begins its summer recess on Friday - now is the time to act!”

    Read more >

  • FDA Commissioner Dr. Robert Califf to Speak at NORD Summit in October

    “Top FDA leaders will address critical issues in rare diseases”

    Read more >