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New Report Finds Medical Treatments for Rare Diseases Account for Only 11% of US Drug Spending; Nearly 80% of Orphan Products Treat Rare Diseases Exclusively
“Majority of pharmaceuticals sales are driven by treatments for common conditions, not rare diseases”
NORD and MedicAlert Foundation Team Up to Protect and Empower the Rare Disease Community
“Partnership of nonprofits will help ensure those with rare diseases receive fast and appropriate care in an emergency”
Actor/Comedian Bob Saget Shares Show Your Stripes Message for Rare Disease Day
“While recognized for his role as Danny Tanner on the hit sitcom “Full House,” his personal connection to the rare community is less well known.”
NORD’s Pamela Gavin Interviewed on Health Equity by PharmaBoardroom for Rare Disease Day
“PharmaBoardroom spoke to Pamela K. Gavin, NORD’s Chief Strategy Officer, to get her insights into the importance of ‘health equity’ and how NORD is working to achieve it for rare disease patients.”
