Search NORD’s Database for reports on more than 1,200 diseases. Search database >
Resources to help you start or grow your patient organization. View resources >
Visit our new platform where rare disease patients can fundraise, communicate and advocate. Start now >
NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >
NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >
The international advocacy day to bring widespread recognition of rare diseases as a global health challenge. Visit site >
NORD Issues Statement Opposing the “Graham-Cassidy” ACA Replacement Plan
“We urge both Republic and Democratic Senators to stand up for the rare disease community and reject the "Graham-Cassidy" proposal as written.”
Protecting Your Healthcare Coverage
“Update (September 18) NORD joins coalition in opposition of the Graham/Cassidy bill, the latest proposal to repeal the Affordable Care Act (ACA).”
Nearly 140 Patient Organizations Support the Orphan Drug Tax Credit
“We will continue to make our voices heard as Congress considers tax reform proposals.”
NORD Publishes New Rare Disease Report on Shprintzen Goldberg Syndrome (SGS)
“New Resource Aims to Provide Information for Patients, Families and the Public”
