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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Find free webinars, fact sheets, infographics and other helpful materials. View resources >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >

News

  • FDA Acting Commissioner to Deliver NORD Rare Summit Keynote

    “We're delighted to announce that Acting FDA Commissioner, Norman E. "Ned" Sharpless will deliver the keynote address at this year's NORD Rare Summit.”

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  • FUNDED BY FDA, C-PATH and NORD TO LAUNCH RARE DISEASE DATA ANALYTICS PLATFORM

    “The collaborative project between the organizations will kick off at a launch meeting in September and will aim to reduce barriers for the development of new treatments and cures for rare diseases.”

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  • Rare Caregiver Respite: Beth’s Story

    “NORD's Rare Caregiver Respite program is allowing Beth and her daughter to vacation as hard as they can! ”

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  • 2019 NORD Rare Summit to Feature Caregivers Who Have Moved from Inspiration to Action

    “This year’s address will feature two speakers whose stories both illustrate the powerful ways in which families impacted by rare diseases are helping to drive progress in research, an increased understanding of diseases and the development of treatments.”

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