To Top

Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • NORD Issues Statement Regarding House Vote on Right to Try

    “We are relieved the bill will not be moving forward at this time and thankful for the many Representatives who voted against the creation of a less-safe, redundant pathway for accessing investigational therapies outside of clinical trials.”

    Read more >

  • 83 Patient and Provider Organizations Remain Opposed to Right to Try Legislation

    “We support all patients with serious and life-threatening diseases gaining access to potentially life-saving treatments, but the Right to Try Act simply will not accomplish this goal.”

    Read more >

  • Another Successful Rare Disease Day®

    “Together, we can truly accomplish a tremendous amount of awareness for rare diseases by participating in Rare Disease Day”

    Read more >

  • 35 Ways to Celebrate the 35th Anniversary of NORD

    “Here are 35 interesting ways to get involved to celebrate the anniversary”

    Read more >