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#NORDintheNews: NORD Featured in Syndicated Article on Parents’ Intuition and Rare Disease
“Parents usually know their child better than anyone, and if a parent suspects something is wrong, it probably is. That was the case for Dan and Laura Wallenberg from Columbus, Ohio. EV Wallenberg was just 5 months old when they noticed that their daughter wasn't eating normally.”
Rare Caregivers Corner: Q&A with Stephanie
“I took a week away to have some mommy time.”
NORD Survey to Better Understand Rare Disease Diagnosis, Care and Treatment in the US: Take Part in Our 30 Year Follow-up
“At NORD, we know that patient-powered initiatives change the world. Our priority is advancing rare disease research and innovation by working together to overcome critical challenges. ”
Reflections of a First Time NORD Summit Attendee: Matthew’s Story
“In the end, I leave the NORD 2019 Summit and move into the following days and weeks decidedly not in the same manner that I entered: understanding that The Time Is Now.”
