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Summit 2021 Virtual

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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Find free webinars, fact sheets, infographics and other helpful materials. View resources >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • From a Horse to a Zebra: Dana’s Rare Disease Story

    “Dana's story is a long journey of symptoms and challenges but ultimately hope and effort towards a more normal life with Ehlers-Danlos”

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  • Rare Disease Cures Accelerator-Data and Analytics Platform – Logo Development Request for Proposal

    “RFP for the creation of a logo and branding guidelines for the Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP)”

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  • Saida’s Story of Strength

    “Saida's rare disease story highlights her two diseases but her unchecked positivity and attitude. Hers is a story to spread comfort and support.”

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  • Loneliness, Connection and Mesothelioma: Tamron’s Rare Disease Story

    “Tamron's story begins with rare cancer but demonstrates the importance of connection and finding community during a rare disease journey”

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