Scroll
To Top

LMS State Report Card MedicAlert RDACs

More Info >

Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Find free webinars, fact sheets, infographics and other helpful materials. View resources >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >

News

  • RDDC and NORD Announce New Partnership to Help Identify Barriers for Rare Disease Patients and their Caregivers

    “New initiative seeks to identify gaps experienced by patients and caregivers in underrepresented communities along their rare disease diagnosis and treatment journey”

    Read more >

  • Help for rare disease patients impacted by recent 2022 hurricanes

    “NORD’s Hurricane Emergency Relief Fund provides limited financial assistance to those with a rare disease who are victims of natural disasters.”

    Read more >

  • NORD Statement on User Fee Reauthorization and Continuing Resolution

    Read more >

  • Honoring Steven Matthews This Rare Cancer Day

    “The Chondrosarcoma Foundation is sharing the story of firefighter Steven Mathews in honor of Rare Cancer Day”

    Read more >