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Tools and Resources

Search NORD’s Database for reports on more than 1,300 diseases. Search database >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can  fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • Join NORD and ABC News for a Rare Disease Day Tweetchat on March 1

    Read more >

  • Join the Running for Rare Team!

    “Runners will join together to help raise awareness for rare diseases while fundraising to support the NORD/NIH Undiagnosed Diseases Patient Assistance Program. ”

    Read more >

  • NORD Establishes Rare Disease Patient/Caregiver Speakers Bureau

    “Patients and Families Will Share Their Stories with Medical Students and Others to Promote Education and Awareness”

    Read more >

  • FDA Invites Patient Organizations to Organize Their Own Meetings on the PFDD Model

    “A great opportunity for patient organizations representing people with rare diseases to share their hopes, challenges and concerns directly with FDA.”

    Read more >