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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • Brandon Hudgins: 2017 Rare Impact Award Honoree

    ““The sense of community is what brings us all together. That’s what helps me come to heart about all of this.””

    Read more >

  • Dr. Cynthia Tifft: 2017 Rare Impact Award Honoree

    “The undiagnosed are the homeless in the rare disease community, and we are the ones that provide temporary shelter.”

    Read more >

  • Christine Grube: 2017 Rare Impact Award Honoree

    “After being diagnosed with Giant Axonal Neuropathy (GAN), Chrissy Grube did something that hardly any person, let alone a child, could decide to do.”

    Read more >

  • Beth Nguyen: 2017 Rare Impact Award Honoree

    “Rather, ten times, die in the surf, heralding the way to a new world, than stand idly on the shore.”

    Read more >