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Highlights from #NORDSummit Session: Mental Health and Rare Cancers
Request for Applications: New Patient Registries
“NORD announces a request for applications for the implementation of up to four new patient registries on the IAMRARE platform”
Rare Disease Advocates and Supporters Share the Importance of Raising Awareness Ahead of Rare Disease Day 2023
“With 100 days till Rare Disease Day 2023, organizations and individuals across the country join the National Organization for Rare Disorders (NORD) to help make a difference for rare disease patients and families”
Maybe Obscure to You, but Life-Changing for Millions of Americans
“126 Organizations Urge Congress to Include Critical FDA Programs and Reforms in Year-End Spending Bill”