Scroll
To Top

NORD Summit LMS State Report Card Policy Alert MedicAlert RDACs

More Info >

Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Find free webinars, fact sheets, infographics and other helpful materials. View resources >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >

News

  • NORD Breakthrough Summit 2022: Highly Anticipated Rare Disease Conference Announces Keynote Speakers, Session Topics

    Read more >

  • Solidify Your Legacy for Make a Will Month

    Read more >

  • NORD Statement on Passage of the Inflation Reduction Act

    “The Inflation Reduction Act is a significant step forward in helping ensure that individuals and families with rare diseases have access to the comprehensive health care they need to survive and thrive”

    Read more >

  • All Things Kabuki and NORD® Launch Natural History Study of Kabuki Syndrome

    “All Things Kabuki and NORD have launched a study with global reach to research Kabuki syndrome”

    Read more >