Search NORD’s Database for reports on more than 1,200 diseases. Search database >
Find free webinars, fact sheets, infographics and other helpful materials. View resources >
Resources to help you start or grow your patient organization. View resources >
Visit our new platform where rare disease patients can fundraise, communicate and advocate. Start now >
NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >
The international advocacy day to bring widespread recognition of rare diseases as a global health challenge. Visit site >
A Message to Chondrosarcoma Patients: Shayna’s Rare Cancer Story
“Shayna's story is meant to give some direction to patients and families who have been newly diagnosed and the importance of advocating and casting a wide net for options”
Rare Disease Innovation and Data Sharing Accelerated by New RDCA-DAP Program
“C-Path, NORD and FDA host annual meeting, demonstration and launch of new rare disease data and analytics platform. ”
NORD Statement on Proposed Changes to the Orphan Drug Tax Credit
“NORD CEO Peter Saltonstall issues a statement on the proposed amendment the Orphan Drug Tax Credit (ODTC)”
Sharing Makayla’s Voice for Rare Cancer Day
“Makayla's story is about the over a decade she has spent fighting GIST and joining together with the community to uplift the voices of rare patients”
