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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Find free webinars, fact sheets, infographics and other helpful materials. View resources >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • The NORD Rare Disease Video Library Offers New Educational Resources

    “Check out this new resource featuring videos on rare diseases and related topics for patients, caregivers, students, professionals and the public. ”

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  • NORD Launches Digital Education Initiative with PlatformQ Health

    “New NORD program aims to increase clinician preparedness and improve the care of patients living with rare diseases.”

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  • Catch Living Rare Forum Plenaries and The Rare Impact Awards on Facebook Live!

    “Tune in for select content during NORD's Living Rare Forum & Rare Impact Awards! ”

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  • Jenny’s ACPMP Story

    “I am elated to say that as of my most recent CT Scan, my biggest tumor has been reduced by about 50%!”

    Read more >