Search Results for: orgs_by_letter.html

Policy Statement

Coalition letter in opposition to the Right to Try Act (S.204)

Policy Statement

Sign-on letter from over 100 rare disease patient organizations in support of the RARE Act of 2018

Policy Statement

NORD letter in support of Connecticut House Bill 5297, an act requiring continuing medical education in screening for rare gastrointestinal cancers

Policy Statement

Coalition letter asking Congress to voice opposition to the proposed rule regarding short-term, limited-duration plans (STLDs)

Policy Statement

Coalition letter in opposition to Michigan Senate Bill 897, a bill requiring the state to implement a work requirement in its Medicaid program

Policy Statement

Coalition letter to Secretary Azar regarding Medicare Part D’s protected classes policy

Policy Statement

Coalition letter asking Governors to voice opposition to the proposed rule regarding short-term, limited-duration plans (STLDs)

Policy Statement

Coalition letter asking Congress to appropriate funds for the Pediatric Device Consortia (PDC) Grant Program

Policy Statement

NORD letter in support of West Virginia House Bill 4524, an act calling for prescriber communication with regard to biosimilars

Policy Statement

Coalition letter in opposition of Rhode Island Senate Bill 2532, an act that would prevent copay assistance from being applied to out-of-pocket expenses

Policy Statement

Sign-on letter to the Senate from 106 patient and provider organizations in opposition to the Right to Try Act

Policy Statement

Coalition letter regarding recent policy changes proposed by the administration

Policy Statement

Updated sign-on letter from over 100 patient and provider organizations in opposition to the Right to Try Act

Policy Statement

Sign-on letter from 82 patient organizations in opposition to the newest version of the Right to Try Act

Policy Statement

NORD letter in support of Connecticut Senate Bill 398, an act relating to the enforcement of Connecticut’s step therapy law

Policy Statement

Coalition letter to Congress regarding medical research within the fiscal year 2019 National Defense Authorization Act

Policy Statement

Coalition letter to Congress in support of the Medical Nutrition Equity Act (S.1194/H.R.2587)

Policy Statement

Coalition sign-on letter to Medicaid Directors on the importance of Medicaid formulary access for rare disease patients

Policy Statement

Coalition letter to Secretary Azar regarding Idaho’s recent insurance bulletin

Policy Statement

NORD letter in support of Ohio Senate Bill 56, an act relating to step-therapy

Policy Statement

NORD letter in support of Oregon House Bill 4156, an act relating to out-of-pocket costs

Policy Statement

Coalition letter to Congress in opposition to the Right to Try Act

Policy Statement

American Plasma Users (APLUS) coalition letter regarding the Patient Notification System (PNS)

Policy Statement

Coalition letter to Congress regarding a desire for a hearing on ensuring patient safety and access in the midst of the Biologics Price Competition and Innovation Act (BPCIA)

Policy Statement

NORD letter in support of South Dakota Senate Bill 75, an act calling for prescriber communication with regard to biosimilars

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Search Results for: orgs_by_letter.html

Coalition letter in opposition to the Right to Try Act (S.204)

Sign-on letter from over 100 rare disease patient organizations in support of the RARE Act of 2018

NORD letter in support of Connecticut House Bill 5297, an act requiring continuing medical education in screening for rare gastrointestinal cancers

Coalition letter asking Congress to voice opposition to the proposed rule regarding short-term, limited-duration plans (STLDs)

Coalition letter in opposition to Michigan Senate Bill 897, a bill requiring the state to implement a work requirement in its Medicaid program

Coalition letter to Secretary Azar regarding Medicare Part D’s protected classes policy

Coalition letter asking Governors to voice opposition to the proposed rule regarding short-term, limited-duration plans (STLDs)

Coalition letter asking Congress to appropriate funds for the Pediatric Device Consortia (PDC) Grant Program

NORD letter in support of West Virginia House Bill 4524, an act calling for prescriber communication with regard to biosimilars

Coalition letter in opposition of Rhode Island Senate Bill 2532, an act that would prevent copay assistance from being applied to out-of-pocket expenses

Sign-on letter to the Senate from 106 patient and provider organizations in opposition to the Right to Try Act

Coalition letter regarding recent policy changes proposed by the administration

Updated sign-on letter from over 100 patient and provider organizations in opposition to the Right to Try Act

Sign-on letter from 82 patient organizations in opposition to the newest version of the Right to Try Act

NORD letter in support of Connecticut Senate Bill 398, an act relating to the enforcement of Connecticut’s step therapy law

Coalition letter to Congress regarding medical research within the fiscal year 2019 National Defense Authorization Act

Coalition letter to Congress in support of the Medical Nutrition Equity Act (S.1194/H.R.2587)

Coalition sign-on letter to Medicaid Directors on the importance of Medicaid formulary access for rare disease patients

Coalition letter to Secretary Azar regarding Idaho’s recent insurance bulletin

NORD letter in support of Ohio Senate Bill 56, an act relating to step-therapy

NORD letter in support of Oregon House Bill 4156, an act relating to out-of-pocket costs

Coalition letter to Congress in opposition to the Right to Try Act

American Plasma Users (APLUS) coalition letter regarding the Patient Notification System (PNS)

Coalition letter to Congress regarding a desire for a hearing on ensuring patient safety and access in the midst of the Biologics Price Competition and Innovation Act (BPCIA)

NORD letter in support of South Dakota Senate Bill 75, an act calling for prescriber communication with regard to biosimilars

Make 2026 Count: Gift research, care, and advocacy for families everywhere

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Search Results for: orgs_by_letter.html

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